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Learn how GA4GH helps expand responsible genomic data use to benefit human health.
News
Discover news, stories, and insights from the forefront of genomic and clinical data sharing.
GA4GH approves two new products: Categorical Variation Representation Specification (Cat-VRS) and Variant Annotation Specification (VA-Spec)
The GA4GH Clinical & Phenotypic Data Capture Work Stream standardises patient data capture to advance disease treatment
GA4GH Policy Brief: children’s data protection and genomic research (part 2: consent and lawful bases)
GA4GH Policy Brief: children’s data protection and genomic research (part 1: general considerations)
Public perceptions of international genetic information sharing for biomedical research in China
What do we mean by “more diverse” data?: GA4GH’s new product encourages a holistic approach to diversity in datasets
GA4GH Genomic Knowledge Standards Work Stream welcomes new Co-Leads Melissa Cline and Alex Wagner
The GA4GH Cancer Community welcomes new Co-Leads Benjamin Haibe-Kains, Zinaida Perova, and Bernie Pope
GA4GH and the Research Data Alliance (RDA) agree to a Strategic Relationship to advance responsible data sharing
The Victor Phillip Dahdaleh Institute of Genomic Medicine at McGill University is formally named as a fifth Host Institution of GA4GH
A letter from the Chair: introducing the members of the inaugural GA4GH Strategic Leadership Committee
GA4GH submits comments on the WHO’s draft principles for human genome access, use, and sharing
Putting GA4GH standards into practice: Mallory Freeberg and Alastair Thomson to lead GA4GH Implementation Forum
Grand challenges in rare diseases: register for the GA4GH Rare Disease Community of Interest webinar on 29 February 2024
GA4GH Clinical & Phenotypic Data Capture Work Stream welcomes new Co-Lead Mónica Muñoz-Torres of the University of Colorado
Two leading standards bodies launch Neuroscience Community, powering a global data network that will speed up answers in autism, Parkinson’s, addiction, and more
Want to help shape guidelines for pandemic prep, schema consensus, sequencing metadata, and categorical variants? Join four new GA4GH groups!
Making strides to bridge genomic data and medicine, the Global Alliance for Genomics and Health (GA4GH) names 10 new Driver Projects
Supporting a collaborative and safe GA4GH: introducing the Code of Ethics and Community Conduct
Shaping the future of genomic data use: GA4GH opens call for next generation of Driver Projects
Public Attitudes for Genomic Policy Brief: what does the United Kingdom public think about the storage and use of its genetic data?
New templates streamline gaining consent for clinical genomics and large-scale initiatives — completing the GA4GH Consent Toolkit
First GA4GH standard published by ISO will reshape how doctors and researchers share phenotypic information
GA4GH Data Access Committee Review Standards policy aims to standardise the data access process
How a bot beamed from California to Japan may stop unnecessary mastectomies for breast cancer patients
Geraldine Van der Auwera of the Broad joins GA4GH as Co-Lead of the Large Scale Genomics Work Stream
GDPR Brief: what constitutes an "international data transfer"? Recent developments by the EDPB and implications for genomic and health data sharing
An international framework for returning clinically actionable genomic results to research participants
GDPR Brief: processing the data of the deceased for scientific research purposes — looking beyond the GDPR?
Genomics in Health Implementation Forum (GHIF) biannual working meeting: advancing human health through the implementation of GA4GH standards
GDPR Brief: navigating international data transfers under GDPR — impediments facing US federal science agencies and research universities
Two NHGRI Genomic Innovator Awards support coordinated development of genomic knowledge standards
GA4GH announces open call for nominations to lead activities around data security and federated analysis
GA4GH 9th Plenary meeting announces Harold Varmus and Alan Christoffels as keynote speakers
GA4GH receives funding from CIHR to advance data sharing tools in the fight against COVID-19
GDPR Brief: finding a route out of the impasse? Ordering the secondary processing of already gathered data in a code of conduct
Standardised variation exchange webinar: using VRS to share genetic variant data in modern systems
GA4GH TES API: bringing compatibility to task execution across HPC systems, the cloud and beyond
GDPR Brief: international “onward” transfers of genomic data under the EU Standard Contractual Clauses
Future of genomic research at risk without greater public trust in how genetic data is shared, survey finds
GDPR Brief: understanding the extraterritorial effect of the GDPR for genomic and health-related research
GA4GH joins international alliance to enable secure and collaborative COVID-19 data research at scale
Webinar recap: GA4GH Passports — benefits of integrating a global electronic ID for accessing biomedical data (part 1)
GDPR Brief: are university-employed scientific researchers "Data Controllers" for the purposes of the GDPR?
GDPR Brief: what records of processing does the GDPR require health sector organisations to maintain?
GDPR Brief: standard contractual clauses for transferring genomic and health data (March 2020 bonus brief)
GDPR Brief: “at least one” legal basis for processing under the GDPR — clarifying Article 6(1)
GDPR Brief: is "consent for genomic and health-related research" specific enough to constitute a valid consent under the GDPR?
Data Security Infrastructure Policy: updated guidelines for implementing widespread security policies
Variation Representation: a standard way of exchanging genetic variation data with precision and consistency
Webinar recap: automating access to human genomics datasets — the GA4GH Data Use Ontology in action
Revised GA4GH regulatory and ethics policies emphasize transparency and proportionate safeguards
GDPR Brief: codes of conduct under the GDPR — a useful but challenging tool to enable responsible international data sharing
GDPR Brief: what is the difference between research ethics consent and data protection consent?
GA4GH helps develop BRCA Exchange to inform understanding of cancer risk by aggregating data on thousands of BRCA1 and BRCA2 variants
htsget, GA4GH’s streaming API, is a bridge to the future for modern genomic data processing
Greater than the sum of its parts: how Matchmaker Exchange is being used to solve today's hardest rare disease cases
Global Alliance for Genomics and Health unveils new genomics API allowing for seamless sharing of genetic data
GA4GH to explore engagement opportunities for global data sharing at ICHG 2016 annual meeting
New pan-Canadian program to accelerate data sharing objectives of the Global Alliance for Genomics and Health