Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

The latest from GA4GH

4 October 2019
Webinar Recap — Automating access to human genomics datasets: the GA4GH Data Use Ontology in action

On Friday, October 27, the GA4GH Data Use and Researcher Identity (DURI) Work Stream hosted the webinar “Automating access to human genomics datasets: the GA4GH Data Use Ontology in action.” More than 100 individuals tuned in to learn about the Data Use Ontology (DUO), a GA4GH standard for automating access to human genomics data. The webinar featured presentations from eight international speakers who have contributed to DUO’s development or implemented it at their local institutions. Another six implementers attended as panelists to answer audience questions following the presentations. Speaker slides and a recording of the webinar are available online.

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3 October 2019
GDPR Brief: Japan obtains the first adequacy agreement under the GDPR

On January 23, 2019, the European Commission (EC) issued its adequacy decision on Japan. As one of the most active countries in large-scale OMICS research, with participation in initiatives such as the International Cancer Genome consortium (ICGC), the International Epigenome Consortium (IHEC), GA4GH and the Human Cell Atlas, this is welcome news for Japanese researchers. In addition to being the first adequacy decision since the GDPR entered into force, it also marks the first mutual decision. As such, Japan has also deemed the EU adequate under its Act on the Protection of Personal Information (APPI).

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21 October 2019 | Boston, USA
GA4GH 7th Plenary Meeting
The GA4GH 7th Plenary Meeting will be held on October 21-23, 2019 at the Hynes Convention Center, Boston, USA. The 7th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.
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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.