Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

The latest from GA4GH

6 July 2020
GA4GH GDPR Brief: Understanding the extraterritorial effect of the GDPR for genomic and health-related research (July 2020)

The GDPR may apply to processing activities happening outside of Europe, commonly referred to as the GDPR’s “extraterritorial effect”. Reflecting the latest guidance on the subject from the European Data Protection Board (EDPB), this brief should be considered an update to an earlier brief on the GDPR’s territorial scope.

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29 June 2020
GA4GH joins International Alliance to enable secure and collaborative COVID-19 data research at scale 

The Global Alliance for Genomics and Health (GA4GH) is one of 19 founding members of the International COVID-19 Data Research Alliance and data analysis Workbench, an independent consortium of leading life science, philanthropic, and research organisations launched to support the rapid development of insights and treatments to combat the global effects of COVID-19. 

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29 September 2020 | Online
GA4GH 8th Plenary Meeting

The GA4GH 8th Plenary Meeting will be held on September 29 – 30, 2020 UTC, and will be completely virtual . The 8th Plenary will bring together global organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community. Register here

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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.