Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

New GA4GH Deliverables Open for Public Comment
Please submit your comments directly on the document or by contacting Adrian Thorogood.

 

Machine Readable Consent Clauses

Deadline: 5 June 2020
Model Research Consent Clauses

Deadline: 26 June 2020

The latest from GA4GH

2 June 2020
Regulatory & Ethics Perspective on COVID-19 Data Sharing: An Interview with Johan Ordish

We continue our series on the role of data sharing during the COVID-19 pandemic. This episode, we hear from Johan Ordish, active member of the GA4GH Regulatory and Ethics Work Stream, on COVID-19 data sharing from a regulatory and ethics perspective.

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1 June 2020
GA4GH GDPR Brief: The interplay between the Clinical Trials Regulation and the GDPR (June 2020)

The EU’s Clinical Trials Regulation (CTR) and the GDPR both apply to clinical trials and (further) scientific research. This GDPR Brief details the interplay between the two regulations.

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29 September 2020 | Online
GA4GH 8th Plenary Meeting

The GA4GH 8th Plenary Meeting will be held on September 29 – 30, 2020 UTC, and will be completely virtual . The 8th Plenary will bring together global organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.

Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.