Enabling responsible genomic data sharing for the benefit of human health
The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.
The GA4GH Copyright Policy is now open for public comment and available for review on google docs or Github. The comment period will be open until February 25, 2020. Please send any questions or comments to Adrian Thorogood (adrian.thorogood@ga4gh.org).
The latest from GA4GH
The GA4GH Steering Committee approves the Service Info and Service Registry APIs—standards that improve service discovery by providing a common format for describing and listing web services.
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Given the importance of SCCs to international data transfers, the December 2019 opinion of Advocate General Saugmandsgaard Øe (AG) on the suitability of standard contractual clauses (SCCs) in Facebook Ireland and Schrems, C-311/18 (“Schrems II”) has caused some consternation.
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The GA4GH 8th Plenary Meeting will be held on September 30 – October 2, 2020, at the Melbourne Convention and Exhibition Centre, Melbourne, Australia. The 8th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.
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How we work
GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.
