Enabling responsible genomic data sharing for the benefit of human health
The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework
The GA4GH Security Technology Infrastructure V3.0 is now open for public comment.
Please submit comments via GitHub or to melissa.konopko@ga4gh.org.
The latest from GA4GH
Informed consent is a powerful ethico-legal requirement in most interventional biomedical research involving human participants. But consent to participate in research is a distinct notion from consent pursuant to the GDPR.
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In a letter to the editor of Nature Biotechnology published on 4 March 2019, members of the Global Alliance for Genomics and Health present current and future extensions of the Beacon API — an open-source web-based protocol for making anonymised genomic data discoverable for research and clinical purposes.
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How we work
GA4GH Work Streams develop standards and tools that are founded on the for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.
