Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

Open for Comment

The following GA4GH standards are open for public comment.

Familial Consent Clauses

Please submit comments via email or directly in the documentby Wednesday, 10 December 2020 at 5pm GMT.

The latest from GA4GH

9 November 2020
GA4GH GDPR Brief: The Concept of Personal Data in the GDPR

The central concepts of “identifiability” and of “personal data” are broadly defined in the GDPR, which can create challenges for actors in the health sector hoping to determine what data is regulated by the GDPR and what data is not.

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28 October 2020
High Depth African Genomes Inform Human Migration and Health

The Human Heredity and Health in Africa (H3Africa) Consortium, a GA4GH Driver Project, conducted whole genome sequencing of 426 individuals from 13 African countries, whose ancestries represented 50 ethnolinguistic groups from across the continent. Their findings have been published in the journal Nature.

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29 September 2020 | Online
GA4GH 8th Plenary Meeting

The GA4GH 8th Plenary Meeting will be held on September 29 – 30, 2020 UTC, and will be completely virtual . The 8th Plenary will bring together global organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community. Register here

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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.