Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

The latest from GA4GH

17 March 2020
GA4GH GDPR Brief: Standard Contractual Clauses for Transferring Genomic and Health Data (March 2020 Bonus Brief)

SCCs can make data transfers to any country possible, including to recipients not covered by the EC adequacy decision for their country (e.g. US recipients not registered in the Privacy Shield). Nevertheless, the Court of Justice of the EU has yet to decide whether SCCs alone establish an adequate level of protection for personal data or if the recipient country’s legal system also requires analysis.

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4 March 2020
GA4GH GDPR Brief: Cloud Computing

Access to large amounts of flexible computing resource can be of interest to organisations with large data sets, such as genomic databases. Developments in personalized medicine and AI enhance the relevance of cloud computing for genomic and health-related research.

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30 September 2020 | Melbourne, Australia
GA4GH 8th Plenary Meeting

The GA4GH 8th Plenary Meeting will be held on September 30 – October 2, 2020, at the Melbourne Convention and Exhibition Centre, Melbourne, Australia. The 8th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.

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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.