Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

The RNAget APIGA4GH Service Info Endpoint, and GA4GH Service Registry are now open for public comment. Read more about GA4GH Service Info Endpoint and GA4GH Service Registry here.

 

Please submit comments via GitHub or to jeremy.adams@ga4gh.org (for RNAget API) or rishi.nag@ga4gh.org (for GA4GH Service Info Endpoint and GA4GH Service Registry).

The latest from GA4GH

10 December 2019
OmicsXchange Podcast Episode 1: Science as a Human Right: An Interview with Dr. Bartha Maria Knoppers

December 10 is International Human Rights Day. For our first guest here on the OmicsXchange Podcast produced by GA4GH, we are talking with Dr. Bartha Maria Knoppers – professor of human genetics and the director of the Center of Genomics and Policy at McGill University – on how article 27 of the 1948 Universal Declaration of Human Rights is important for global genomic data sharing.

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2 December 2019
GDPR Brief: Is 'Consent for Genomic and Health-Related Research' Specific Enough to Constitute a Valid Consent Under the GDPR?

There has been an emerging consensus in the genomic research community that “broad consent” is an ethically and legally permissible form of consent. For example, the Council of Europe’s recent recommendations on protection of health-related data expressly permit broad consent for scientific research.

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21 October 2019 | Boston, USA
GA4GH 7th Plenary Meeting
The GA4GH 7th Plenary Meeting will be held on October 21-23, 2019 at the Hynes Convention Center, Boston, USA. The 7th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.
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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.