The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.
The Return of Results Policy, produced by the Regulatory & Ethics Work Stream, is now open for public comment. All comments are due by March 4, 5pm GMT.
This brief will discuss, with specific reference to genomic and health-related research, the three ways in which the public interest features in the GDPR: a legal basis, a derogation for the processing of genomic and health data, and a transfer mechanism.Read more
For nearly two decades, the EU Standard Contractual Clauses have been a key legal mechanism for transferring personal data out of the EEA (and now, the UK). Despite this, the SCCs’ requirements for onward transfers have received little attention.Read more
The GA4GH 8th Plenary Meeting was held on September 29 – 30, 2020 UTC as a completely virtual experience. The meeting brought together global organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that focused on advancing development work for the immediate data sharing needs of the community. View Meeting Materials here.Read more
GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.