Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

Genomic Data Toolkit

Regulatory & Ethics Toolkit

Data Security Toolkit

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The latest from GA4GH

6 May 2019
How can researchers approach international data transfers under the GDPR?

Data controllers that plan to transfer personal data to a non-EU/EEA country or international organization (including for onward transfers of personal data from the third country or an international organization to another third country or to another international organization) must be mindful of the GDPR’s strict provisions on international data transfers.

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2 May 2019
ELIXIR and GA4GH expand collaboration

ELIXIR and GA4GH are creating technical and regulatory solutions to enable a federated international ecosystem for human genomic data.

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21 October 2019
GA4GH 7th Plenary Meeting
The GA4GH 7th Plenary Meeting will be held on October 21-23, 2019 at the Hynes Convention Center, Boston, USA. The 7th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.
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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

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How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.

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