Enabling responsible genomic data sharing for the benefit of human health


The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.


The GA4GH Regulatory and Ethics Work Stream revised Consent Policy is now open for public comment until September 6, 2019.

The latest from GA4GH

5 August 2019
GDPR Brief: Codes of Conduct under the GDPR: A Useful but Challenging Tool to Enable Responsible International Data Sharing

Under the GDPR, organizations within a given sector or representative body can develop Codes of Conduct to help overcome key data protection challenges. Developing an approved Code is a serious endeavour and difficult to achieve, but can be of great benefit, including by better enabling responsible international data sharing in genomics and health-related research. Such Codes complement rather than supersede the GDPR.

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1 July 2019
GDPR Brief: Are pseudonymised data within the GPDR's scope?

The GDPR now explicitly mentions, and even defines, pseudonymisation, namely the processing of personal data so they can no longer be attributed to a specific data subject without the use of additional information (provided certain measures are in place to prevent re-identification). Coding is commonly used in health research and can, in some cases, act as a pseudonymisation technique. The question arises as to whether pseudonymised data are no longer personal data and hence no longer subject to the GDPR.

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21 October 2019 | Boston, USA
GA4GH 7th Plenary Meeting
The GA4GH 7th Plenary Meeting will be held on October 21-23, 2019 at the Hynes Convention Center, Boston, USA. The 7th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.
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Organizational members including:

Broad Institute
Wellcome Sanger Institute

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.