Enabling responsible genomic data sharing for the benefit of human health

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

OPEN FOR COMMENT

 

GA4GH is updating its product development process, which will be used to propose, develop, and approve standards. Share your feedback via GitHub or email by 30 May 2022 at 5pm UTC.
The GA4GH Regulatory & Ethics Work Stream (REWS) Consent Task Force has developed the Table of Clinical Genomics Consent Clauses, a collection of sample clinical genomic clauses for use when drafting authorization forms for genomic testing in clinical care pathways. Please provide your feedback by adding comments to the document or via email by 31 May 2022 at 5 pm UTC.

The latest from GA4GH

4 May 2022
Episode 15: The first gapless human genome sequence with Karen Miga

This is Episode 15 of the OmicsXchange, where we will be discussing the first gapless human genome sequence with Karen Miga, co-chair of the Telomere-to-Telomere Consortium.

Read more

29 April 2022
GA4GH GDPR Brief: Federated analysis for responsible data sharing under the GDPR

The latest GDPR Brief, written by Melissa Cline, addresses how a well-designed federated analysis mechanism can enable responsible data sharing that complies with the GDPR.

Read more

20 April 2022 | Montreal, Canada • Virtual
April Connect 2022

At GA4GH Connect, our biannual meeting held on April 20-22, 2022, active GA4GH contributors gathered to advance the standards development and gather feedback on current needs.

Read more

Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.