Enabling responsible genomic data sharing for the benefit of human health
The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework
The latest from GA4GH
In the eyes of the GDPR, not all data are equal. Rather, ‘special categories’ of personal data are given additional protection. In the December 2018 installment of the GDPR Forum Brief, Johan Ordish and Alison Hall of the PHG Foundation discuss those of relevance to the genomics and health community.
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The GA4GH Regulatory and Ethics WorkStream (REWS) has released a Korean translation of its Framework for Responsible Sharing of Genomic and Health Related Data. Produced by by Hannah Kim and So Yoon Kim of Yonsei University in Seoul, South Korea, the new translation will allow institutions across the region to integrate GA4GH data sharing policy frames within their local contexts.
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The GA4GH 7th Plenary Meeting will be held in the continental United States following the annual meeting of the American Society for Human Genetics. Please stay tuned for more details.
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How we work
GA4GH Work Streams develop standards and tools that are founded on the for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.
