Enabling responsible genomic data sharing for the benefit of human health
The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.
The latest from GA4GH
The concept of a data ‘controller’ is central to the operation of the GDPR because it allocates responsibility for compliance with data protection rules. In the genomics context, determining who is a joint data controller can be complicated.
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GA4GH has announced the release of its 2020-2021 Strategic Roadmap as well as the 2020 GA4GH Connection Demos.
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The GA4GH 8th Plenary Meeting will be held on September 29 – 30, 2020 UTC, and will be completely virtual . The 8th Plenary will bring together global organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community. Register here
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How we work
GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.
