GA4GH

Enabling responsible genomic data sharing for the benefit of human health

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

OPEN FOR COMMENT

Genetic Discrimination Observatory Information Document is now open for comment. Please submit comments and feedback via email by Tuesday, August 31 at 5pm UTC.
Review Information Document

Data Access Committee Review Standards Policy is now open for comment. Please submit comments and feedback via email by Tuesday, August 31 at 5pm UTC.
Review Policy

Genomic Data Toolkit

Regulatory & Ethics Toolkit

Data Security Toolkit

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The latest from GA4GH

2 August 2021

GA4GH GDPR Brief: The Role of the European Data Protection Board in Interpreting the GDPR

This Brief aims to clarify the roles of the European Data Protection Board (‘the Board’) and the Article 29 Working Party (WP29) in interpreting the GDPR, against the backdrop of their development as well as their most important tasks, powers, and competences.

8 July 2021

GA4GH Standards in a Global Learning Health System

GA4GH standards can play a role at every step throughout a learning health system. Join the GA4GH Secretariat as they walk through a potential data life cycle, from obtaining consent from a data donor, conducting research, and finally to the eventual insights that will benefit human health and medicine.

28 September 2021 | Virtual

GA4GH 9th Plenary Meeting

This year, the GA4GH 9th Plenary event will be entirely virtual and take place September 28–29, 2021.

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Organizational members including:

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How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.

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