Enabling responsible genomic data sharing for the benefit of human health
The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.
The latest from GA4GH
Edward Dove (University of Edinburgh), Yann Joly (McGill University), and Jaime Guidry Auvil (National Institutes of Health) have been named new GA4GH Work Stream Leads and members of the GA4GH Steering Committee.
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Article 6(1) of the GDPR states that: “Processing shall be lawful only if and to the extent that at least one of the following applies: […]”; 6(1)(a)–(f) present the different bases. Does “at least one” legal basis suggest that a number of bases – could be used at the initial point of gathering personal data, thereby creating greater flexibility when considering the legal basis for further, secondary processing of those data?
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The GA4GH 8th Plenary Meeting will be held on September 30 – October 2, 2020, at the Melbourne Convention and Exhibition Centre, Melbourne, Australia. The 8th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.
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How we work
GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.
