Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

The latest from GA4GH

3 August 2020
GA4GH GDPR Brief: Storage limitations for genomic and health-related personal data (August 2020)

Under the GDPR, personal data may only be kept if strictly necessary to fulfil the purpose of processing. The special provisions of the GDPR on data retention for research are, however, not a carte blanche to hang on to all research data.

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27 July 2020
OmicsXchange Podcast Episode 8: HDR UK's COVID-19 Response: An Interview with Caroline Cake

On episode 8 of the OmicsXchange, we are speaking with Caroline Cake, CEO of Health Data Research UK, about the HDR UK response to the ongoing COVID-19 pandemic and their role in setting up the International COVID-19 Data Research Alliance.

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29 September 2020 | Online
GA4GH 8th Plenary Meeting

The GA4GH 8th Plenary Meeting will be held on September 29 – 30, 2020 UTC, and will be completely virtual . The 8th Plenary will bring together global organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community. Register here

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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.