Enabling responsible genomic data sharing for the benefit of human health

 

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

Several GA4GH deliverables are currently available for public comment. Please review the full list and provide your feedback before July 31.

The latest from GA4GH

1 July 2019
GDPR Brief: Are pseudonymised data within the GPDR's scope?

The GDPR now explicitly mentions, and even defines, pseudonymisation, namely the processing of personal data so they can no longer be attributed to a specific data subject without the use of additional information (provided certain measures are in place to prevent re-identification). Coding is commonly used in health research and can, in some cases, act as a pseudonymisation technique. The question arises as to whether pseudonymised data are no longer personal data and hence no longer subject to the GDPR.

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14 June 2019
Guest Post: Research and Clinical Genomics are Converging

GA4GH Chair Ewan Birney participated in the creation of the first reference human genome and is now involved in the roll-out of large-scale clinical genomics. His story is illustrative of a much bigger movement of genomics into healthcare over the past decade.

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21 October 2019 | Boston, USA
GA4GH 7th Plenary Meeting
The GA4GH 7th Plenary Meeting will be held on October 21-23, 2019 at the Hynes Convention Center, Boston, USA. The 7th Plenary will bring together organizations and stakeholders from the genomics and health community for two days of keynotes, talks, updates, and workshops that will focus on advancing development work for the immediate data sharing needs of the community.
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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.