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Discover news, stories, and insights from the forefront of genomic and clinical data sharing.

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GA4GH logo and McGill's Victor Phillip Dahdaleh Institute of Genomic Medicine logo, with a sentence saying "Announcing GA4GH's Fifth Host Institution"
20 Jun 2024
The Victor Phillip Dahdaleh Institute of Genomic Medicine at McGill University is formally named as a fifth Host Institution of GA4GH
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13 Jun 2024
A letter from the Chair: introducing the members of the inaugural GA4GH Strategic Leadership Committee
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A DNA strand extending across a blue background, filled with molecular structures and more DNA
28 May 2024
GA4GH submits comments on the WHO’s draft principles for human genome access, use, and sharing
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Headshots of GA4GH Data Security Work Steam Co-Leads, Jaime Delgado and Andrew Russette
24 May 2024
GA4GH Data Security Work Stream welcomes new Co-Leads Jaime Delgado and Andrew Russette
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HDR UK and GA4GH strategic partnership
16 Apr 2024
HDR UK and GA4GH form a strategic partnership to unite genomic and health data
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Neon DNA strands intertwining with digital code symbolising the fusion of biology and technology
11 Apr 2024
GDPR Brief: when are synthetic health data personal data?
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6 Mar 2024
Putting GA4GH standards into practice: Mallory Freeberg and Alastair Thomson to lead GA4GH Implementation Forum
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21 Feb 2024
Supporting alignment across GA4GH standards: TASC seeks feedback on new pagination guide
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20 Feb 2024
Grand challenges in rare diseases: register for the GA4GH Rare Disease Community of Interest webinar on 29 February 2024
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14 Feb 2024
NIH and GA4GH commit to ongoing collaboration
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GA4GH announces new Strategic Leadership Committee
1 Feb 2024
GA4GH opens call for members of the new Strategic Leadership Committee
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8 Dec 2023
GA4GH Clinical & Phenotypic Data Capture Work Stream welcomes new Co-Lead Mónica Muñoz-Torres of the University of Colorado
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Geometric brain set against a binary code background
30 Nov 2023
Two leading standards bodies launch Neuroscience Community, powering a global data network that will speed up answers in autism, Parkinson’s, addiction, and more
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Four individuals are collaborating together
16 Nov 2023
Want to help shape guidelines for pandemic prep, schema consensus, sequencing metadata, and categorical variants? Join four new GA4GH groups!
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13 Oct 2023
Public Attitudes for Genomic Policy Brief: genetic exceptionalism
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20 Sep 2023
Heidi Rehm will succeed Ewan Birney as GA4GH Chair
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20 Sep 2023
Making strides to bridge genomic data and medicine, the Global Alliance for Genomics and Health (GA4GH) names 10 new Driver Projects
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15 Sep 2023
Supporting a collaborative and safe GA4GH: introducing the Code of Ethics and Community Conduct
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A cartoon image of a doctor talking to a patient, surrounded by medical and health icons
12 Sep 2023
Public Attitudes for Genomic Policy Brief: familiarity
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8 Sep 2023
Scaling VCF for a genomic revolution
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Machine receives DNA, turns an orange gear, yields a straight orange line.
17 Jul 2023
refget v2.0 links the hidden dictionaries of DNA
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Image of Nara Sobreira next to words "Welcome new GA4GH Co-Lead"
14 Jul 2023
GA4GH Discovery Work Stream welcomes new Co-Lead Nara Sobreira of Johns Hopkins Medicine
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24 May 2023
GA4GH refreshes its strategic plan
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Doctor showing patient their returned data
23 May 2023
Public Attitudes for Genomic Policy Brief: return of research results
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A glowing globe with connecting nodes spread across the globe
27 Apr 2023
GDPR Brief: GDPR going forward — prospects of resuming transatlantic data sharing
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20 Feb 2023
Shaping the future of genomic data use: GA4GH opens call for next generation of Driver Projects
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7 Feb 2023
Representing structural variation: introducing a new VRS Special Interest Group
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10 Jan 2023
Public Attitudes for Genomic Policy Brief: what does the United Kingdom public think about the storage and use of its genetic data?
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Person pressing a donate button on a keyboard.
7 Nov 2022
GDPR Brief: the EU Data Governance Act — new pathways for consented reuse of information
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GA4GH Inc Board of Directors.
3 Oct 2022
GA4GH Inc. adds five new Directors, expanding global representation in genomics leadership
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Ewan Birney giving the opening remarks at 10th Plenary to an audience of people.
30 Sep 2022
Barcelona shapes the future of medicine
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Person holding a tool to tighten the gears in someone's mind.
31 Aug 2022
Public Attitudes for Genomic Policy Brief: trust and trustworthiness
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11 Aug 2022
New templates streamline gaining consent for clinical genomics and large-scale initiatives — completing the GA4GH Consent Toolkit
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2 Aug 2022
First GA4GH standard published by ISO will reshape how doctors and researchers share phenotypic information
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17 Jun 2022
GDPR Brief: data protection implications of publishing metadata to enable discovery
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10 Jun 2022
GA4GH Data Access Committee Review Standards policy aims to standardise the data access process
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A woman is looking at an uncertain test result.
3 Jun 2022
How a bot beamed from California to Japan may stop unnecessary mastectomies for breast cancer patients
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Text that says welcome new GA4GH co-lead.
1 Jun 2022
Geraldine Van der Auwera of the Broad joins GA4GH as Co-Lead of the Large Scale Genomics Work Stream
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A woman is searching something on a computer.
25 May 2022
New release of GA4GH Beacon expands genomic and clinical data access
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29 Apr 2022
GDPR Brief: federated analysis for responsible data sharing under the GDPR
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1 Apr 2022
GA4GH Community Spotlight: Reggan Thomas
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GA4GH BED v1.0
30 Mar 2022
GA4GH BED v1.0: a formal standard sets ground rules for genomic features
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17 Mar 2022
GA4GH announces new Co-Leads for Work Streams and FASP
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11 Mar 2022
GA4GH Community Spotlight: Michael Baudis
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10 Mar 2022
GA4GH seeks feedback on meeting international genomics community needs
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3 Mar 2022
Fireside chat with Susan Fairley and Chris Wigley
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26 Feb 2022
GA4GH response to proposed updates to NIH Genomic Data Sharing Policy
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14 Feb 2022
GDPR Brief: what constitutes an "international data transfer"? Recent developments by the EDPB and implications for genomic and health data sharing
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11 Feb 2022
An international framework for returning clinically actionable genomic results to research participants
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4 Feb 2022
GA4GH Community Spotlight: Kristina Kékesi-Lafrance
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Phenopackets v2.0
2 Feb 2022
Phenopackets v2.0 expands utility to provide a more complete medical picture
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10 Jan 2022
Data Connect: a come-as-you-are approach to data sharing
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7 Jan 2022
GA4GH Community Spotlight: Soichi Ogishima
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6 Jan 2022
The Engagement Framework: building inclusive engagement practices in genomics
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16 Dec 2021
GDPR Brief: processing the data of the deceased for scientific research purposes — looking beyond the GDPR?
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3 Dec 2021
GA4GH Community Spotlight: Lindsay Smith
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Second issue of Cell Genomics features GA4GH
10 Nov 2021
Second issue of Cell Genomics features GA4GH
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5 Nov 2021
GA4GH Community Spotlight: Mélanie Courtot
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4 Nov 2021
Genomics in Health Implementation Forum (GHIF) biannual working meeting: advancing human health through the implementation of GA4GH standards
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Fireside Chat with Peter Goodhand and Catalina Lopez-Correa
27 Oct 2021
Fireside chat with Peter Goodhand and Catalina Lopez-Correa
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22 Oct 2021
GDPR Brief: navigating international data transfers under GDPR — impediments facing US federal science agencies and research universities
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1 Oct 2021
GA4GH Community Spotlight: Maili Raven-Adams
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30 Sep 2021
Two NHGRI Genomic Innovator Awards support coordinated development of genomic knowledge standards
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27 Sep 2021
GA4GH announces open call for nominations to lead activities around data security and federated analysis
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13 Sep 2021
GA4GH 9th Plenary meeting announces Harold Varmus and Alan Christoffels as keynote speakers
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3 Sep 2021
GA4GH Community Spotlight: Zornitza Stark
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9 Aug 2021
GA4GH receives funding from CIHR to advance data sharing tools in the fight against COVID-19
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7 Aug 2021
GA4GH Community Spotlight: Alice Mann
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2 Aug 2021
GDPR Brief: the role of the European Data Protection Board in interpreting the GDPR
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8 Jul 2021
GA4GH standards in a global learning health system
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2 Jul 2021
GA4GH Community Spotlight: Elizabeth Janes
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28 Jun 2021
GA4GH launches new GA4GH 101 webinar series
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7 Jun 2021
GDPR Brief: familial genomic data and the GDPR
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4 Jun 2021
GA4GH Community Spotlight: Neerjah Skantharajah
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17 May 2021
GDPR Brief: finding a route out of the impasse? Ordering the secondary processing of already gathered data in a code of conduct
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13 May 2021
Standardised variation exchange webinar: using VRS to share genetic variant data in modern systems
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DUO Workshop
14 Apr 2021
DUO workshop: translating consent forms and data sharing policies into DUO
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5 Apr 2021
GA4GH shares seven open-source projects as part of Google Summer of Code 2021
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Familial Consent Clauses
22 Mar 2021
Familial Consent Clauses approved as part of the GA4GH Consent Toolkit
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19 Mar 2021
Pedigree Connectathon: testing interoperability across the research-healthcare continuum
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9 Mar 2021
GA4GH TES API: bringing compatibility to task execution across HPC systems, the cloud and beyond
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1 Mar 2021
GA4GH names Dr Susan Fairley as Chief Standards Officer
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1 Feb 2021
GDPR Brief: the public interest and the GDPR
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14 Dec 2020
GDPR Brief: international “onward” transfers of genomic data under the EU Standard Contractual Clauses
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4 Dec 2020
GA4GH announces incorporation as a not-for-profit organisation
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9 Nov 2020
GDPR Brief: the concept of personal data in the GDPR
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28 Oct 2020
High-depth African genomes inform human migration and health
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19 Oct 2020
TES and Search APIs now open for public comment
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5 Oct 2020
GDPR Brief: joint data controllership in the genomics context
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29 Sep 2020
GA4GH 2020 Connection Demos highlight the value of interoperability in genomics 
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29 Sep 2020
GA4GH releases three new deliverables to support responsible genomic data sharing
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18 Sep 2020
Future of genomic research at risk without greater public trust in how genetic data is shared, survey finds
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9 Sep 2020
GA4GH 8th Plenary meeting to be free, open, and entirely virtual
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8 Sep 2020
GDPR Brief: transferring genomic and health-related data following Schrems II
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22 Aug 2020
GEM Japan releases largest-ever open-access Japanese variant frequency panel
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3 Aug 2020
GDPR Brief: storage limitations for genomic and health-related personal data
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6 Jul 2020
GDPR Brief: understanding the extraterritorial effect of the GDPR for genomic and health-related research
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29 Jun 2020
GA4GH joins international alliance to enable secure and collaborative COVID-19 data research at scale 
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25 Jun 2020
Webinar recap: implementing GA4GH Passports and AAI — a technical deep dive (part 2)
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22 Jun 2020
Webinar recap: GA4GH Passports — benefits of integrating a global electronic ID for accessing biomedical data (part 1)
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1 Jun 2020
GDPR Brief: the interplay between the Clinical Trials Regulation and the GDPR
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28 May 2020
GA4GH Passports webinar series
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21 May 2020
GDPR Brief: the Finnish Secondary Use Act 2019 (May 2020 bonus brief)
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Scientists Working on their Computers
4 May 2020
GDPR Brief: are university-employed scientific researchers "Data Controllers" for the purposes of the GDPR?
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30 Apr 2020
Regulatory and ethics perspective on COVID-19 data sharing
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9 Apr 2020
Breaking down the data silos to create a “data translator” for enhanced cancer care 
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6 Apr 2020
GDPR Brief: what records of processing does the GDPR require health sector organisations to maintain?
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17 Mar 2020
GDPR Brief: standard contractual clauses for transferring genomic and health data (March 2020 bonus brief)
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4 Mar 2020
GDPR Brief: cloud computing
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17 Feb 2020
New standards Service Info and Service Registry advance service discovery
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3 Feb 2020
GDPR Brief: standard contractual clauses — opinion of the Advocate General in Schrems II
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13 Jan 2020
GA4GH names new Work Stream leads
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6 Jan 2020
GDPR Brief: “at least one” legal basis for processing under the GDPR — clarifying Article 6(1)
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DRS Standard
17 Dec 2019
DRS API: enabling cloud-based data access and retrieval
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GA4GH Passports & AAI
17 Dec 2019
GA4GH Passports and the Authorization & Authentication Infrastructure
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2 Dec 2019
GDPR Brief: is "consent for genomic and health-related research" specific enough to constitute a valid consent under the GDPR?
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htsget
2 Dec 2019
Genomics England implements GA4GH API to provide secure access to genomic data for the NHS
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4 Nov 2019
GDPR Brief: withdrawing consent to data processing under the GDPR
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EJP RD Promotes Global Data Sharing to Bring Hope to Rare Disease Patients
1 Nov 2019
EJP RD promotes global data sharing to bring hope to rare disease patients
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22 Oct 2019
Announcing five new standards at GA4GH 7th Plenary meeting
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22 Oct 2019
Crypt4GH: a secure method for sharing human genetic data
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22 Oct 2019
Data Security Infrastructure Policy: updated guidelines for implementing widespread security policies
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22 Oct 2019
Phenopackets: standardising and exchanging patient phenotypic data
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22 Oct 2019
Tool Registry Service API: enabling an interoperable library of genomics analysis tools
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22 Oct 2019
Variation Representation: a standard way of exchanging genetic variation data with precision and consistency
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4 Oct 2019
Webinar recap: automating access to human genomics datasets — the GA4GH Data Use Ontology in action
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3 Oct 2019
GDPR Brief: Japan obtains the first adequacy agreement under the GDPR
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1 Oct 2019
Guest post: seven myths about CRAM — the community standard for genomic data compression
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30 Sep 2019
Your DNA, Your Say publishes study on trust in english-speaking populations
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24 Sep 2019
Revised GA4GH regulatory and ethics policies emphasize transparency and proportionate safeguards
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18 Sep 2019
Webinar: automating access to human genomics datasets using the GA4GH Data Use Ontology
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2 Sep 2019
GDPR Brief: the Data Protection Impact Assessment and genomic health research
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5 Aug 2019
GDPR Brief: codes of conduct under the GDPR — a useful but challenging tool to enable responsible international data sharing
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1 Jul 2019
GDPR Brief: are pseudonymised data within the GPDR's scope?
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14 Jun 2019
Guest post: research and clinical genomics are converging
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3 Jun 2019
GDPR Brief: how is Article 89 implemented across the EU/EEA?
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6 May 2019
GDPR Brief: how can researchers approach international data transfers under the GDPR?
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2 May 2019
ELIXIR and GA4GH expand collaboration
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17 Apr 2019
David Bernick and Jean-Pierre Hubaux take on leadership of GA4GH Data Security Work Stream
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#CRAM4GH Twitter Chat
9 Apr 2019
#CRAM4GH Twitter chat: recap
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2 Apr 2019
New Driver Project aims to expand data sharing to accelerate autism research
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1 Apr 2019
GDPR Brief: when can I rely on broad consent for research?
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25 Mar 2019
CRAM: the genomics compression standard
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4 Mar 2019
Extensions to the GA4GH Beacon API will enable a more powerful community resource
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4 Mar 2019
GDPR Brief: what is the difference between research ethics consent and data protection consent?
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8 Feb 2019
Data Use Ontology approved as a GA4GH technical standard
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4 Feb 2019
GDPR Brief: what information can research participants demand under the GDPR?
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4 Feb 2019
New GA4GH Driver Projects in 2019
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24 Jan 2019
Transcontinental health data sharing project pilots GA4GH suite
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17 Jan 2019
Now open for comment: GA4GH Data Use Ontology
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BRCA Exchange
9 Jan 2019
GA4GH helps develop BRCA Exchange to inform understanding of cancer risk by aggregating data on thousands of BRCA1 and BRCA2 variants
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7 Jan 2019
GDPR Brief: automated decision-making and profiling
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3 Jan 2019
GA4GH publishes review of national genomic data initiatives
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10 Dec 2018
GA4GH 2019 leadership transitions
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5 Dec 2018
GDPR Brief: what specific protections apply to health-related, genetic, or biometric data?
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3 Dec 2018
GA4GH Framework now available in Korean — call for more translations!
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5 Nov 2018
Guest post: putting the "global" in the Global Alliance for Genomics and Health
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2 Nov 2018
Comparative analysis reveals a diverse international regulatory landscape for genetic data
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1 Nov 2018
GA4GH releases refget API for accessing genomic reference sequence data
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1 Nov 2018
GDPR Brief: to whom does the GDPR apply?
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26 Oct 2018
GA4GH WES API enables portable genomic analysis
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19 Oct 2018
GA4GH and ELIXIR release Beacon API v1.0 with increased security measures
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18 Oct 2018
GA4GH 6th Plenary meeting report now available
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12 Oct 2018
Human Mutation special issue features ClinGen, a GA4GH Driver Project
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10 Oct 2018
GDPR Brief: can genomic data be anonymised?
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5 Oct 2018
GA4GH announces open call for new Driver Projects
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4 Oct 2018
GA4GH announces new interoperability standards for genomic data sharing
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26 Sep 2018
A harmonised resource for clinical interpretations of cancer mutations
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7 Sep 2018
Introducing the GA4GH GDPR & International Health Data Sharing Forum
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4 Sep 2018
GDPR Brief: ten ways the GDPR impacts international health-related data sharing
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31 Aug 2018
Your DNA, Your Say: the “why” and the “how”
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8 Aug 2018
A new access tier for genomic and health-related data
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2 Aug 2018
Maintaining public trust in use of big data for health science
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9 Jul 2018
Guest post: responsible data sharing in an increasingly open era
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GA4GH streaming API
22 Jun 2018
htsget, GA4GH’s streaming API, is a bridge to the future for modern genomic data processing
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8 Jun 2018
H3Africa research framework builds on work of GA4GH
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11 May 2018
NIH All of Us programme to implement GA4GH data sharing standards
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13 Apr 2018
Ethics of genomic data sharing: an interview with Bartha Maria Knoppers
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3 Apr 2018
Guest post: a message from the GA4GH Chair (April 2018)
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23 Mar 2018
A brief tribute to Sir John Sulston, champion of open science
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2 Mar 2018
Interview with David Altshuler: a GA4GH retrospective
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23 Feb 2018
Guest post: when a newsletter is more than a newsletter
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16 Feb 2018
Canadian Genomics Cloud to develop GA4GH-compliant precision medicine platform
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5 Feb 2018
GA4GH releases 2018 Strategic Roadmap
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8 Nov 2017
A data biosphere for biomedical research
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15 Oct 2017
GA4GH strikes formal collaborations with 15 international genomic data initiatives
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13 Oct 2017
Data sharing brings hope to rare disease patients around the globe
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22 Sep 2017
GA4GH membership reaches 500 organisations
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14 Jul 2017
Francis Collins and Harold Varmus to speak at GA4GH 5th Plenary meeting
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14 Jun 2017
GA4GH in 2022
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17 May 2017
Share the data to save lives: a global cure for a global disease
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7 Apr 2017
New strategies for securing Beacon datasets
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24 Mar 2017
We want to hear from you!
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23 Mar 2017
Video: BRCA Exchange now contains more than 17,900 variants
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10 Mar 2017
GA4GH and others call for an international coalition of data resources
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3 Mar 2017
Greater than the sum of its parts: how Matchmaker Exchange is being used to solve today's hardest rare disease cases
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18 Feb 2017
GA4GH at AAAS 2017
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15 Feb 2017
Beacon goes global
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24 Jan 2017
Ethics Review Recognition Policy makes sharing international research data easier
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13 Jan 2017
Policy recommendations for sharing data in the US Cancer Moonshot project
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9 Jan 2017
Public variant databases: data share with care
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4 Jan 2017
ELIXIR and GA4GH Beacon team up to advance genomic data sharing
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21 Dec 2016
Genomic data sharing on the silver screen
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6 Dec 2016
Five challenges to open science around the globe
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28 Nov 2016
Global Alliance for Genomics and Health unveils new genomics API allowing for seamless sharing of genetic data
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14 Oct 2016
Ewan Birney to lead Global Alliance
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13 Oct 2016
Welcome to the GA4GH news site
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10 Jun 2016
GA4GH presents vision, model for genomic and clinical data sharing
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23 May 2016
Closing the evidence gap on public attitudes toward genetic data handling
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5 May 2016
Big data saves lives, say cancer experts
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3 Apr 2016
BRCA Exchange aggregates publicly accessible BRCA1 and BRCA2 variants
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28 Mar 2016
GA4GH to explore engagement opportunities for global data sharing at ICHG 2016 annual meeting
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24 Mar 2016
Developing ethics review mutual recognition for data-intensive international research
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15 Dec 2015
New pan-Canadian program to accelerate data sharing objectives of the Global Alliance for Genomics and Health
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29 Oct 2015
Beacon Project mitigates privacy risks while maximizing value of responsible data sharing
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10 Jun 2015
Global Alliance for Genomics and Health marks two years of progress
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18 Oct 2014
Global Alliance for Genomics and Health members meet to advance genomic data sharing
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13 Sep 2014
Global Genes™ honours work of the Global Alliance for Genomics and Health
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4 Mar 2014
Global Alliance focused on responsible data sharing shows progress in standards development and membership at first partner meeting
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