About us
Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Our Strategic Road Map defines strategies, standards, and policy frameworks to support responsible global use of genomic and related health data.
Discover how a meeting of 50 leaders in genomics and medicine led to an alliance uniting more than 5,000 individuals and organisations to benefit human health.
GA4GH Inc. is a not-for-profit organisation that supports the global GA4GH community.
The GA4GH Council, consisting of the Executive Committee, Strategic Leadership Committee, and Product Steering Committee, guides our collaborative, globe-spanning alliance.
The Funders Forum brings together organisations that offer both financial support and strategic guidance.
The EDI Advisory Group responds to issues raised in the GA4GH community, finding equitable, inclusive ways to build products that benefit diverse groups.
Distributed across a number of Host Institutions, our staff team supports the mission and operations of GA4GH.
Curious who we are? Meet the people and organisations across six continents who make up GA4GH.
More than 500 organisations connected to genomics — in healthcare, research, patient advocacy, industry, and beyond — have signed onto the mission and vision of GA4GH as Organisational Members.
These core Organisational Members are genomic data initiatives that have committed resources to guide GA4GH work and pilot our products.
This subset of Organisational Members whose networks or infrastructure align with GA4GH priorities has made a long-term commitment to engaging with our community.
Local and national organisations assign experts to spend at least 30% of their time building GA4GH products.
Anyone working in genomics and related fields is invited to participate in our inclusive community by creating and using new products.
Wondering what GA4GH does? Learn how we find and overcome challenges to expanding responsible genomic data use for the benefit of human health.
Study Groups define needs. Participants survey the landscape of the genomics and health community and determine whether GA4GH can help.
Work Streams create products. Community members join together to develop technical standards, policy frameworks, and policy tools that overcome hurdles to international genomic data use.
GIF solves problems. Organisations in the forum pilot GA4GH products in real-world situations. Along the way, they troubleshoot products, suggest updates, and flag additional needs.
NIF finds challenges and opportunities in genomics at a global scale. National programmes meet to share best practices, avoid incompatabilities, and help translate genomics into benefits for human health.
Communities of Interest find challenges and opportunities in areas such as rare disease, cancer, and infectious disease. Participants pinpoint real-world problems that would benefit from broad data use.
Find out what’s happening with up to the minute meeting schedules for the GA4GH community.
See all our products — always free and open-source. Do you work on cloud genomics, data discovery, user access, data security or regulatory policy and ethics? Need to represent genomic, phenotypic, or clinical data? We’ve got a solution for you.
All GA4GH standards, frameworks, and tools follow the Product Development and Approval Process before being officially adopted.
Learn how other organisations have implemented GA4GH products to solve real-world problems.
Help us transform the future of genomic data use! See how GA4GH can benefit you — whether you’re using our products, writing our standards, subscribing to a newsletter, or more.
Help create new global standards and frameworks for responsible genomic data use.
Align your organisation with the GA4GH mission and vision.
Want to advance both your career and responsible genomic data sharing at the same time? See our open leadership opportunities.
Join our international team and help us advance genomic data use for the benefit of human health.
Share your thoughts on all GA4GH products currently open for public comment.
Solve real problems by aligning your organisation with the world’s genomics standards. We offer software dvelopers both customisable and out-of-the-box solutions to help you get started.
Learn more about upcoming GA4GH events. See reports and recordings from our past events.
Speak directly to the global genomics and health community while supporting GA4GH strategy.
Be the first to hear about the latest GA4GH products, upcoming meetings, new initiatives, and more.
Questions? We would love to hear from you.
Read news, stories, and insights from the forefront of genomic and clinical data use.
Attend an upcoming GA4GH event, or view meeting reports from past events.
See new projects, updates, and calls for support from the Work Streams.
Read academic papers coauthored by GA4GH contributors.
Listen to our podcast OmicsXchange, featuring discussions from leaders in the world of genomics, health, and data sharing.
Check out our videos, then subscribe to our YouTube channel for more content.
View the latest GA4GH updates, Genomics and Health News, Implementation Notes, GDPR Briefs, and more.
Discover all things GA4GH: explore our news, events, videos, podcasts, announcements, publications, and newsletters.
1 Oct 2021
This GA4GH Community Spotlight is the fifth in a monthly series featuring individuals from across GA4GH. This month we are featuring Maili Raven-Adams who is a Policy Analyst at GA4GH.
This GA4GH Community Spotlight is the fifth in a monthly series featuring individuals from across GA4GH. This month we are featuring Maili Raven-Adams. Maili recently joined GA4GH in June 2021 as a Policy Analyst based at the Wellcome Sanger Institute in Cambridge, UK. Working primarily within the Regulatory and Ethics Work Stream (REWS) Maili’s role aims to support ongoing REWS work. As part of this she is tasked with research, analysis and the proposal of policies that GA4GH should pursue. She is excited to be involved in GA4GH as it will allow her to make a real difference to shaping policies that pave the way for the future of responsible genomic research and data sharing on an international level.
What is your favorite thing about the GA4GH Community and why?
Since joining the GA4GH secretariat everyone I have met has been extremely welcoming and provided me with an opportunity to contribute to and collaborate within discussions. I love that everyone in the team and the wider GA4GH community is excited by the work they are conducting and are dedicated to making a real-world difference with their involvement. It is great to be involved in such a driven group of like-minded individuals!
What scientific discovery throughout history is most fascinating to you?
I find scientific discoveries that were once confined to science fiction particularly interesting. For example, gene editing like CRISPR-Cas9 and the possibility of artificial wombs. It fascinates me how-these developments open up largely unprecedented legal and ethical debate that often divides opinion. In light of both the benefits and the fears surrounding these discoveries responsible regulation is required. Trying to find this balance, in order to benefit human-kind, has always appealed to me.
Why is diverse global representation critical to advancing progress in the field?
We need to hear contributions from people around the world and from different backgrounds that are relevant to GA4GH. By listening to diverse individuals from a range of environments we can best serve the community with GA4GH products, standards and policies. Please get involved if you want to – your input is fundamental to our work!
I also believe that it is particularly vital that data sets used in genetic and genomic research represent the population the research is aimed at benefiting. Unfortunately studies are too often based off Caucasian males as the norm. This results in groups of individuals being underrepresented in research and benefited less by outcomes. We need to ensure genomic data used in research is representative of all populations in order to ensure equal and equitable progress.