Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Our Strategic Road Map defines strategies, standards, and policy frameworks to support responsible global use of genomic and related health data.
Discover how a meeting of 50 leaders in genomics and medicine led to an alliance uniting more than 5,000 individuals and organisations to benefit human health.
GA4GH Inc. is a not-for-profit organisation that supports the global GA4GH community.
To guide our collaborative, globe-spanning alliance, GA4GH relies on a Standards Steering Committee and an Executive Committee.
The Funders Forum brings together organisations that offer both financial support and strategic guidance.
The EDI Advisory Group responds to issues raised in the GA4GH community, finding equitable, inclusive ways to build products that benefit diverse groups.
Distributed across four Host Institutions, our staff team supports the mission and operations of GA4GH.
Curious who we are? Meet the people and organisations across six continents who make up GA4GH.
More than 500 organisations connected to genomics — in healthcare, research, patient advocacy, industry, and beyond — have signed onto the mission and vision of GA4GH as Organisational Members.
These core Organisational Members are genomic data initiatives that have committed resources to guide GA4GH work and pilot our products.
This subset of Organisational Members whose networks or infrastructure align with GA4GH priorities has made a long-term commitment to engaging with our community.
Local and national organisations assign experts to spend at least 30% of their time building GA4GH products.
Anyone working in genomics and related fields is invited to participate in our inclusive community by creating and using new products.
Wondering what GA4GH does? Learn how we find and overcome challenges to expanding responsible genomic data use for the benefit of human health.
Study Groups define needs. Participants survey the landscape of the genomics and health community and determine whether GA4GH can help.
Work Streams create products. Community members join together to develop technical standards, policy frameworks, and policy tools that overcome hurdles to international genomic data use.
GIF solves problems. Organisations in the forum pilot GA4GH products in real-world situations. Along the way, they troubleshoot products, suggest updates, and flag additional needs.
NIF finds challenges and opportunities in genomics at a global scale. National programmes meet to share best practices, avoid incompatabilities, and help translate genomics into benefits for human health.
Communities of Interest find challenges and opportunities in areas such as rare disease, cancer, and infectious disease. Participants pinpoint real-world problems that would benefit from broad data use.
See all our products — always free and open-source. Do you work on cloud genomics, data discovery, user access, data security or regulatory policy and ethics? Need to represent genomic, phenotypic, or clinical data? We’ve got a solution for you.
All GA4GH standards, frameworks, and tools follow the Product Development and Approval Process before being officially adopted.
Learn how other organisations have implemented GA4GH products to solve real-world problems.
Help us transform the future of genomic data use! See how GA4GH can benefit you — whether you’re using our products, writing our standards, subscribing to a newsletter, or more.
Help create new global standards and frameworks for responsible genomic data use.
Align your organisation with the GA4GH mission and vision.
Solve your real-world data problems with support from this valuable network of global institutions.
Work with like-minded groups committed to better data use in areas like rare disease, cancer, and infectious disease.
Share your thoughts on all GA4GH products currently open for public comment.
Solve real problems by aligning your organisation with the world’s genomics standards. We offer software dvelopers both customisable and out-of-the-box solutions to help you get started.
Learn more about upcoming GA4GH events. See reports and recordings from our past events.
Speak directly to the global genomics and health community while supporting GA4GH strategy.
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Read news, stories, and insights from the forefront of genomic and clinical data use.
Attend an upcoming GA4GH event, or view meeting reports from past events.
See new projects, updates, and calls for support from the Work Streams.
Read academic papers coauthored by GA4GH contributors.
Listen to our podcast OmicsXchange, featuring discussions from leaders in the world of genomics, health, and data sharing.
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View the latest GA4GH updates, Genomics and Health News, Implementation Notes, GDPR Briefs, and more.
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29 Jun 2020
The Global Alliance for Genomics and Health (GA4GH) is one of 19 founding members of the International COVID-19 Data Research Alliance and data analysis Workbench, an independent consortium of leading life science, philanthropic, and research organisations launched to support the rapid development of insights and treatments to combat the global effects of COVID-19.
The Global Alliance for Genomics and Health (GA4GH) is one of 19 founding members of the International COVID-19 Data Research Alliance and data analysis Workbench, an independent consortium of leading life science, philanthropic, and research organisations launched on June 26, 2020 to support the rapid development of insights and treatments to combat the global effects of COVID-19.
Many organisations across the world are conducting studies into the disease and generating data that, when aggregated and reanalysed, can lead to powerful insights that help accelerate discovery of interventions. However, the data are often siloed meaning it is difficult for researchers to share and collaborate quickly to leverage the expertise and capabilities of 21st century research and analysis. The International COVID-19 Data Research Alliance and Workbench will provide an environment for focused collaborative research, matching high value data from many sources with cutting edge analysis to accelerate collaboration, discovery, and development of insights and treatments to combat COVID-19, all with privacy and accessibility in mind.
“At GA4GH we believe that responsible sharing of high quality research and health data is critical to the field of life sciences; this need is ever more apparent now, as the world faces one of the worst disease outbreaks in history,” said GA4GH CEO, Peter Goodhand. “We are proud to support the International Alliance as it convenes the community to accelerate research and improve health outcomes.”
Convened by Health Data Research UK and funded by the Therapeutics Accelerator, the International Alliance will draw on expertise and work in partnership with the established UK Health Data Research Alliance. Members will aim to align to a common set of principles and standards, based in part on the GA4GH Framework for Responsible Sharing of Genomic and Health-related Data, for the ethical and responsible use of data for public benefit. Other founding members of the International Alliance include the Bill & Melinda Gates Foundation, Minderoo Foundation, Wellcome, African Academy of Sciences, HDR Network Canada, Genomics England, and the Infectious Diseases Data Observatory.
Initially, the International Alliance will offer a co-ordinated global response to enable more insights to be derived from data related to the COVID-19 pandemic. Over the longer-term, it will enable scientific discovery to respond to future disease outbreaks. The International Alliance is seeking membership from organisations such as life science companies, academic institutions and clinical research organisations that control vital research, health and biomedical datasets. Whilst the International Alliance will not hold or control data itself, the aim is for its members’ datasets to be listed on the Health Data Research Innovation Gateway, enabling anyone around the world conducting vital research on disease outbreaks to discover and request access to these important datasets.
The Workbench will provide a set of tools that allows scientists to discover, access and analyse global multi-dimensional datasets and develop an efficient approach to working across boundaries, essential to achieving a rapid response to COVID-19 and future pandemics whilst respecting confidentiality and privacy. The Workbench will connect to regional or national data infrastructures used by members of the International Alliance, such as data from BREATHE, the Health Data Research Hub for Respiratory Health in partnership with SAIL Databank. It will consolidate data and metadata from numerous federated repositories to allow analysts to work collectively on a target problem. Initial projects will focus on clinical trials of existing drugs repurposed for the treatment of COVID-19, and international studies to understand susceptibility and disease progression.