Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Our Strategic Road Map defines strategies, standards, and policy frameworks to support responsible global use of genomic and related health data.
Discover how a meeting of 50 leaders in genomics and medicine led to an alliance uniting more than 5,000 individuals and organisations to benefit human health.
GA4GH Inc. is a not-for-profit organisation that supports the global GA4GH community.
To guide our collaborative, globe-spanning alliance, GA4GH relies on a Standards Steering Committee and an Executive Committee.
The Funders Forum brings together organisations that offer both financial support and strategic guidance.
The EDI Advisory Group responds to issues raised in the GA4GH community, finding equitable, inclusive ways to build products that benefit diverse groups.
Distributed across four Host Institutions, our staff team supports the mission and operations of GA4GH.
Curious who we are? Meet the people and organisations across six continents who make up GA4GH.
More than 500 organisations connected to genomics — in healthcare, research, patient advocacy, industry, and beyond — have signed onto the mission and vision of GA4GH as Organisational Members.
These core Organisational Members are genomic data initiatives that have committed resources to guide GA4GH work and pilot our products.
This subset of Organisational Members whose networks or infrastructure align with GA4GH priorities has made a long-term commitment to engaging with our community.
Local and national organisations assign experts to spend at least 30% of their time building GA4GH products.
Anyone working in genomics and related fields is invited to participate in our inclusive community by creating and using new products.
Wondering what GA4GH does? Learn how we find and overcome challenges to expanding responsible genomic data use for the benefit of human health.
Study Groups define needs. Participants survey the landscape of the genomics and health community and determine whether GA4GH can help.
Work Streams create products. Community members join together to develop technical standards, policy frameworks, and policy tools that overcome hurdles to international genomic data use.
GIF solves problems. Organisations in the forum pilot GA4GH products in real-world situations. Along the way, they troubleshoot products, suggest updates, and flag additional needs.
NIF finds challenges and opportunities in genomics at a global scale. National programmes meet to share best practices, avoid incompatabilities, and help translate genomics into benefits for human health.
Communities of Interest find challenges and opportunities in areas such as rare disease, cancer, and infectious disease. Participants pinpoint real-world problems that would benefit from broad data use.
See all our products — always free and open-source. Do you work on cloud genomics, data discovery, user access, data security or regulatory policy and ethics? Need to represent genomic, phenotypic, or clinical data? We’ve got a solution for you.
All GA4GH standards, frameworks, and tools follow the Product Development and Approval Process before being officially adopted.
Learn how other organisations have implemented GA4GH products to solve real-world problems.
Help us transform the future of genomic data use! See how GA4GH can benefit you — whether you’re using our products, writing our standards, subscribing to a newsletter, or more.
Help create new global standards and frameworks for responsible genomic data use.
Align your organisation with the GA4GH mission and vision.
Solve your real-world data problems with support from this valuable network of global institutions.
Work with like-minded groups committed to better data use in areas like rare disease, cancer, and infectious disease.
Share your thoughts on all GA4GH products currently open for public comment.
Solve real problems by aligning your organisation with the world’s genomics standards. We offer software dvelopers both customisable and out-of-the-box solutions to help you get started.
Learn more about upcoming GA4GH events. See reports and recordings from our past events.
Speak directly to the global genomics and health community while supporting GA4GH strategy.
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Questions? We would love to hear from you.
Read news, stories, and insights from the forefront of genomic and clinical data use.
Attend an upcoming GA4GH event, or view meeting reports from past events.
See new projects, updates, and calls for support from the Work Streams.
Read academic papers coauthored by GA4GH contributors.
Listen to our podcast OmicsXchange, featuring discussions from leaders in the world of genomics, health, and data sharing.
Check out our videos, then subscribe to our YouTube channel for more content.
View the latest GA4GH updates, Genomics and Health News, Implementation Notes, GDPR Briefs, and more.
Discover all things GA4GH: explore our news, events, videos, podcasts, announcements, publications, and newsletters.
28 Mar 2016
On April 3, 2016, GA4GH hosted a global engagement workshop to coincide with the Annual Meeting of the International Congress of Human Genetics (ICHG). Additionally, a joint session with the International Rare Diseases Research Consortium (IRDiRC) was held during the main body of the conference on April 6.
KYOTO, JAPAN (March 28, 2016) — The Global Alliance for Genomics and Health (GA4GH) is a community of individuals and world-leading organizations working together to create interoperable tools and approaches to enable genomic and clinical data sharing. On April 3, 2016, GA4GH will host a global engagement workshop to coincide with the Annual Meeting of the International Congress of Human Genetics (ICHG). Additionally, a joint session with the International Rare Diseases Research Consortium (IRDiRC) will be held during the main body of the conference on April 6.
“The GA4GH is committed to enabling global sharing of genomic and health related data, but we cannot do this without engagement of the entire international community,” said Peter Goodhand, GA4GH executive director. “The activities at ICHG will give us an opportunity to demonstrate how we plan to achieve our mission and to enlist wider global participation — an absolutely critical step for us to be successful.”
The workshop on April 3 will include presentations from more than a dozen notable speakers in the field of genomic medicine, including Eric Lander of the Broad Institute of MIT and Harvard (Cambridge, US), Makoto Suematsu of the Japan Agency for Medical Research and Development (Tokyo, Japan), and Sharon Terry of the Genetic Alliance (Washington DC, US). Attendees will learn about progress and current state of the GA4GH as an organization, as well as obtain insight from the Japanese and global perspectives through presentations from six regional initiatives, including a presentation from Masayuki Yamamoto of Tohoku University (Sendai, Japan). The full speaker list and agenda can be found on the event website, where interested parties can also register for the free workshop. Attendance at the main ICHG conference is not required for the workshop.
“The Japanese community is actively engaging in a variety of genomic data sharing activities,” said Kazuto Kato, a professor at Osaka University (Osaka, Japan) and a member of the GA4GH Steering Committee. “These efforts to share data across national and institutional boundaries come with a series of regulatory and ethical challenges in addition to the not insignificant technical issues. This workshop provides an opportunity to tackle those questions through conversations with a globally diverse set of leaders and participants.”
The meeting will provide a tremendous opportunity to strengthen global engagement and participation in genomic data sharing through the GA4GH. The researchers, clinicians, patient advocates, and industry members who make up this community are working together to create the tools and approaches necessary for global genomic data sharing. For instance, the Genomics API provides technical standards for interoperable exchange of information between genomic data providers and consumers and allows them to work together on a global scale to advance genome research and clinical application. The Framework for Responsible Sharing of Genomic and Health Related Data has been translated into 12 languages including Japanese and offers foundational principles and core elements for responsible data sharing guided by human rights, including privacy, non-discrimination, and procedural fairness. Several opportunities already exist for the global community to get involved with these and other activities through, including participation in any of the GA4GH working groups or demonstration projects. For more information on all of these activities, please visit our website.
The Global Alliance for Genomics and Health is an international, non-profit alliance formed to accelerate the potential of genomic medicine to advance human health. Bringing together over 350 leading organizations working in healthcare, research, disease and patient advocacy, life science, and information technology, GA4GH Members are working together to create a common framework of tools, methods, and harmonized approaches and supporting demonstration projects to enable the responsible, voluntary, and secure sharing of genomic and clinical data. Learn more at: http://genomicsandhealth.org.