Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Our Strategic Road Map defines strategies, standards, and policy frameworks to support responsible global use of genomic and related health data.
Discover how a meeting of 50 leaders in genomics and medicine led to an alliance uniting more than 5,000 individuals and organisations to benefit human health.
GA4GH Inc. is a not-for-profit organisation that supports the global GA4GH community.
To guide our collaborative, globe-spanning alliance, GA4GH relies on a Standards Steering Committee and an Executive Committee.
The Funders Forum brings together organisations that offer both financial support and strategic guidance.
The EDI Advisory Group responds to issues raised in the GA4GH community, finding equitable, inclusive ways to build products that benefit diverse groups.
Distributed across four Host Institutions, our staff team supports the mission and operations of GA4GH.
Curious who we are? Meet the people and organisations across six continents who make up GA4GH.
More than 500 organisations connected to genomics — in healthcare, research, patient advocacy, industry, and beyond — have signed onto the mission and vision of GA4GH as Organisational Members.
These core Organisational Members are genomic data initiatives that have committed resources to guide GA4GH work and pilot our products.
This subset of Organisational Members whose networks or infrastructure align with GA4GH priorities has made a long-term commitment to engaging with our community.
Local and national organisations assign experts to spend at least 30% of their time building GA4GH products.
Anyone working in genomics and related fields is invited to participate in our inclusive community by creating and using new products.
Wondering what GA4GH does? Learn how we find and overcome challenges to expanding responsible genomic data use for the benefit of human health.
Study Groups define needs. Participants survey the landscape of the genomics and health community and determine whether GA4GH can help.
Work Streams create products. Community members join together to develop technical standards, policy frameworks, and policy tools that overcome hurdles to international genomic data use.
GIF solves problems. Organisations in the forum pilot GA4GH products in real-world situations. Along the way, they troubleshoot products, suggest updates, and flag additional needs.
NIF finds challenges and opportunities in genomics at a global scale. National programmes meet to share best practices, avoid incompatabilities, and help translate genomics into benefits for human health.
Communities of Interest find challenges and opportunities in areas such as rare disease, cancer, and infectious disease. Participants pinpoint real-world problems that would benefit from broad data use.
See all our products — always free and open-source. Do you work on cloud genomics, data discovery, user access, data security or regulatory policy and ethics? Need to represent genomic, phenotypic, or clinical data? We’ve got a solution for you.
All GA4GH standards, frameworks, and tools follow the Product Development and Approval Process before being officially adopted.
Learn how other organisations have implemented GA4GH products to solve real-world problems.
Help us transform the future of genomic data use! See how GA4GH can benefit you — whether you’re using our products, writing our standards, subscribing to a newsletter, or more.
Help create new global standards and frameworks for responsible genomic data use.
Align your organisation with the GA4GH mission and vision.
Solve your real-world data problems with support from this valuable network of global institutions.
Work with like-minded groups committed to better data use in areas like rare disease, cancer, and infectious disease.
Share your thoughts on all GA4GH products currently open for public comment.
Solve real problems by aligning your organisation with the world’s genomics standards. We offer software dvelopers both customisable and out-of-the-box solutions to help you get started.
Learn more about upcoming GA4GH events. See reports and recordings from our past events.
Speak directly to the global genomics and health community while supporting GA4GH strategy.
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Questions? We would love to hear from you.
Read news, stories, and insights from the forefront of genomic and clinical data use.
Attend an upcoming GA4GH event, or view meeting reports from past events.
See new projects, updates, and calls for support from the Work Streams.
Read academic papers coauthored by GA4GH contributors.
Listen to our podcast OmicsXchange, featuring discussions from leaders in the world of genomics, health, and data sharing.
Check out our videos, then subscribe to our YouTube channel for more content.
View the latest GA4GH updates, Genomics and Health News, Implementation Notes, GDPR Briefs, and more.
Discover all things GA4GH: explore our news, events, videos, podcasts, announcements, publications, and newsletters.
15 Dec 2015
Genome Canada and the Canadian Institutes of Health Research (CIHR) today announced a $3.3 million investment in CanSHARE – a panCanadian program that will enable innovation in the use of genomic data for health care for patients in Canada and worldwide.
OTTAWA, CANADA – Genome Canada and the Canadian Institutes of Health Research (CIHR) today announced a $3.3 million investment in CanSHARE – a panCanadian program that will enable innovation in the use of genomic data for health care for patients in Canada and worldwide. This program will create the policies and tools for Canadian clinicians and researchers to share genomic and clinical datasets across Canada and with international partners.
The program will strengthen Canada’s ability to help rapidly advance the objectives of the Global Alliance for Genomics and Health (GA4GH), which is looking to create a common strategy using interoperable approaches and initiatives to enable the responsible, secure and effective sharing of genomic and clinical data for the benefit of patients worldwide.
CanSHARE is led by McGill University Professor Dr. Bartha Maria Knoppers, a member of the GA4GH Steering Committee and Chair of the Public Population Project in Genomics and Society (P3G), an international consortium dedicated to the development and management of multidisciplinary research infrastructures around the world. CanSHARE is co-led by Dr. Michael Brudno of The Hospital for Sick Children in Toronto, and Dr. Jan Friedman of the University of British Columbia. Other team members include some of Canada’s most renowned clinicians and researchers in genomics and related areas of life science.
The Global Alliance for Genomics and Health (GA4GH) is an international coalition dedicated to improving human health by maximizing the potential of genomic medicine. GA4GH brings together 375 of the world’s leading institutions in healthcare, research, disease advocacy, life science and information technology to create the tools and approaches needed for responsible, voluntary, and secure sharing of genomic and clinical data.
CanSHARE will further the objectives of the GA4GH, and will also reach beyond to impact other international bodies with investments in big data, including several international consortia where Canada plays a major role such as the International Cancer Genome Consortium, International Rare Disease Research Consortium, and International Human Epigenomic Consortium.
The $3.3 million in funding for CanSHARE is provided from multiple sources, including Genome Canada, CIHR, Génome Québec, Genome British Columbia and the Ontario Ministry of Research and Innovation. In addition, TELUS and Genome British Columbia will support approved CanSHARE “New Initiatives”, as Pilot Projects. These initiatives will be dedicated to improving human health by maximizing the potential of genomic medicine through effective and responsible data sharing.
The program will draft a number of policies related to consent, privacy and security, paediatrics, accountability, and ethics review equivalency. It also involves demonstration projects that touch on data related to rare diseases, cancer and other disease areas.
“We are a government that believes in science and that good scientific knowledge should inform decision making. Through this new investment in CanSHARE, our world-class researchers will be taking a leadership role in enhancing and facilitating collaboration and data sharing with the ultimate goal of improving the health and wellbeing of Canadians and people worldwide.”
– The Honourable Kirsty Duncan, Minister of Science
“This Canadian team is perfectly positioned to contribute towards achieving the goals of the Global Alliance for Genomics and Health. They are building on years of expertise and a track record of excellence in genomic research, including research on the complex ethical, economic, environmental, legal and social issues surrounding this rapidly advancing field of science and technology.”
– Dr. Cindy Bell, Interim President and CEO of Genome Canada
“Investing in big data sharing to improve patient care in Canada and around the world is a priority for CIHR. We are delighted to partner with Genome Canada to support CanSHARE, an innovative program that will facilitate better collaboration among clinicians and researchers throughout Canada and beyond.”
– Dr. Paul Lasko, Scientific Director of CIHR’s Institute of Genetics
“With this initiative Canada’s international leadership in the genomic policy arena will be reinforced. Its founding role in the GA4GH has been recognized and supported. Now, the actual and emerging challenges of international data sharing can be addressed”
– Dr. Bartha Maria Knoppers, CanSHARE Project Leader
The Global Alliance for Genomics and Health (GA4GH) was formed in 2013 to accelerate the potential of genomic medicine to advance human health and today brings together over 375 leading institutions worldwide working in healthcare, research, disease advocacy, life science and information technology. GA4GH Members are working together to create a common framework of tools, methods, and harmonized approaches and supporting demonstration projects to enable the responsible, voluntary, and secure sharing of genomic and clinical data.
Genome Canada is a not-for-profit organization that invests in genomic science and technology and its translation into applications across multiple sectors to produce social and economic benefits for all Canadians.
The Canadian Institutes of Health Research (CIHR) is the Government of Canada’s health research investment agency. CIHR’s mission is to create new scientific knowledge and to enable its translation into improved health, more effective health services and products, and a strengthened health care system for Canadians. Composed of 13 Institutes, CIHR provides leadership and support to more than 13,000 health researchers and trainees across Canada.