Model Consent Clauses for Rare Disease Research Contributors
We would like to acknowledge the following community members for contributing to this initiative:
- Jack Goldblatt, University of Western Australia, Perth, Australia
- Rosario Isasi, Institute for Bioethics and Health Policy, University of Miami, Miami, USA
- Petra Kaufmann, AveXis, Chicago, USA
- Bartha Knoppers, Center of Genomics and Policy, McGill University, Montreal, Canada
- Fruzsina Molnar Gabor, Heidelberg Academy of Sciences and Humanities, Heidelberg, Germany
- Minh Thu Nguyen, Center of Genomics and Policy, McGill University, Montreal, Canada
- Laetitia Ouillade, AFM-Téléthon, Evry, France
- Eric Sid, National Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, USA
- Mahsa Shabani, University of Leuven, Leuven, Belgium
- Anne-Marie Tassé, Center of Genomics and Policy, McGill University, Montreal, Canada
- Durhane Wong-Rieger, Canadian Organization for Rare Disorders, Toronto, Canada