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Model Consent Clauses for Rare Disease Research Contributors
We would like to acknowledge the following community members for contributing to this initiative:
Jack Goldblatt,
University of Western Australia, Perth, Australia
Rosario Isasi,
Institute for Bioethics and Health Policy, University of Miami, Miami, USA
Petra Kaufmann,
AveXis, Chicago, USA
Bartha Knoppers,
Center of Genomics and Policy, McGill University, Montreal, Canada
Fruzsina Molnar Gabor,
Heidelberg Academy of Sciences and Humanities, Heidelberg, Germany
Minh Thu Nguyen,
Center of Genomics and Policy, McGill University, Montreal, Canada
Laetitia Ouillade,
AFM-Téléthon, Evry, France
Eric Sid,
National Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, USA
Mahsa Shabani,
University of Leuven, Leuven, Belgium
Anne-Marie Tassé,
Center of Genomics and Policy, McGill University, Montreal, Canada
Durhane Wong-Rieger,
Canadian Organization for Rare Disorders, Toronto, Canada