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Responsible Data Sharing to Respond to the COVID-19 Pandemic: Ethical and Legal Considerations
Shares key legal and ethical issues of human genomic research in the context of the COVID-19 pandemic
Tackling the COVID-19 pandemic effectively and equitably demands rapid collaboration and data sharing across borders. Developed by the GA4GH Regulatory & Ethics Work Stream (REWS), the Responsible Data Sharing to Respond to the Covid-19 Pandemic: Ethical and Legal Considerations document highlights key legal and ethical issues that the human genomic research community faces — such as privacy and data protection, public health ethics, and intellectual property.
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Benefits
- Dives into key legal and ethical considerations for responsible data sharing in response to COVID-19
- Provides information on the kinds of modifications to key regulatory pathways that are being implemented for genomics researchers, noting that these will differ between jurisdictions
Target users
Researchers, clinicians, clinical laboratories, data generators, data custodians, data access committees, ethics review committees, data protection authorities, funding agencies, developers, research participants & patient communities, public, security officers, and research institutes
Image summary: This document offers key considerations on data sharing during the Covid-19 pandemic.
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v3.0
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Dive deeper into this product! An effective and equitable response to the Covid-19 pandemic requires rapid and sustained international collaboration and data sharing. The Responsible Data Sharing to Respond to the Covid-19 Pandemic: Ethical and Legal Considerations document highlights key legal and ethical issues that the human genomic research community faces in supporting the global effort to combat COVID-19. The document discusses privacy and data protection considerations pertaining to the EU, USA, Canada, and Australia; flexibility in intellectual property laws and medical devices to respond to the pandemic in a timely manner; the importance of open science to encourage rapid data sharing; and ethical considerations around data access.
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Don't see your name? Get in touch:
- Joaquin Dopazo
Progress and Health Foundation - Marc Fiume
DNAstack - Kais Ghedira
Institut Pasteur de Tunis - Yann Joly
Centre of Genomics and Policy - Richard Milne
Wellcome Connecting Science, Wellcome Genome Campus - Pilar Nicolas
Independent Contributor, University of the Basque Country - Adrian Thorogood
Terry Fox Research Institute
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