Tackling the COVID-19 pandemic effectively and equitably demands rapid collaboration and data sharing across borders. Developed by the GA4GH Regulatory & Ethics Work Stream (REWS), the Responsible Data Sharing to Respond to the Covid-19 Pandemic: Ethical and Legal Considerations document highlights key legal and ethical issues that the human genomic research community faces — such as privacy and data protection, public health ethics, and intellectual property.
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Benefits
- Dives into key legal and ethical considerations for responsible data sharing in response to COVID-19
- Provides information on the kinds of modifications to key regulatory pathways that are being implemented for genomics researchers, noting that these will differ between jurisdictions
Target users
Researchers, clinicians, clinical laboratories, data generators, data custodians, data access committees, ethics review committees, data protection authorities, funding agencies, developers, research participants & patient communities, public, security officers, and research institutes
Documents
| Date | Title |
|---|---|
| 14 September 2023 | Code of Ethics and Community Conduct (CECC) |
| 12 January 2023 | Responsible Data Sharing to Respond to the COVID-19 Pandemic: Ethical and Legal Considerations (v3.0) |
Contributors
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Get in touch- Joaquin DopazoProgress and Health Foundation
- Marc FiumeDNAstack, Toronto
- Kais GhediraInstitut Pasteur de Tunis
- Yann JolyCentre of Genomics and Policy, Montreal
- Richard MilneWellcome Connecting Science, Wellcome Genome Campus
- Pilar NicolasIndependent Contributor, University of the Basque Country
- Johan OrdishThe Alan Turing Institute
- Adrian ThorogoodTerry Fox Research Institute, Vancouver, Canada
