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Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Public Attitudes for Genomic Policy — Blog Posts
Translates findings from the “Your DNA, Your Say” project and other studies of public attitudes into useful briefs and infographics
People around the world have different feelings about how researchers collect, use, and share genetic and health data. The Public Attitudes for Genomic Policy blog series aims to make findings from studies of public attitudes, such as the “Your DNA, Your Say” project, useful to policymakers, genomics researchers, and others. The GA4GH Regulatory & Ethics Work Stream (REWS) publishes the series.
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Benefits
- Creates accessible information addressing public attitudes towards genomic research, in the form of short briefs and accompanying infographics
- Disseminates findings of the Your DNA, Your Say study, as well as looking at wider international public attitudes studies
- Aims to inform stakeholders, such as policymakers and researchers on how to address public attitudes
Target users
Researchers, and clinicians
Image summary: This blog series helps inform policy by sharing insights on public attitudes towards genomics
Community resources
Dive deeper into this product! The Public Attitudes for Genomic Policy blog series aims to translate findings from the “Your DNA, Your Say” initiative (YDYS) and other public attitudes studies into useful outputs for stakeholders, such as policymakers and other researchers. YDYS explores how people around the world feel about the collection, use, and sharing of genetic and health data for research. The blog series aims to explore the key topics of YDYS, such as dual trust and trustworthiness, return of results, and genetic exceptionalism, as well as develop further information on wider public attitudes and considerations relevant to each key topic. We are looking for members to write these briefs, and support the work of others.
Date
Title
Info
Date
Title
15 Dec 2023
14 Sep 2023
Don't see your name? Get in touch:
- Yvonne Bombard
University of Toronto, Unity Health Toronto - Anna Middleton
Wellcome Connecting Science, Wellcome Genome Campus - Richard Milne
Wellcome Connecting Science, Wellcome Genome Campus - Maili Raven-Adams
The Nuffield Council on Bioethics - Bronwyn Terrill
Garvan Institute of Medical Research
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Catch up with all news and articles associated with Public Attitudes for Genomic Policy — Blog Posts.
The role of the ‘commercialisation effect’ in shaping Australians’ attitudes towards a hypothetical national genomic repository
Public Attitudes for Genomic Policy Brief: The perceived risks of sharing genomic data with researchers
