Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Learn how GA4GH helps expand responsible genomic data use to benefit human health.
Our Strategic Road Map defines strategies, standards, and policy frameworks to support responsible global use of genomic and related health data.
Discover how a meeting of 50 leaders in genomics and medicine led to an alliance uniting more than 5,000 individuals and organisations to benefit human health.
GA4GH Inc. is a not-for-profit organisation that supports the global GA4GH community.
To guide our collaborative, globe-spanning alliance, GA4GH relies on a Standards Steering Committee and an Executive Committee.
The Funders Forum brings together organisations that offer both financial support and strategic guidance.
The EDI Advisory Group responds to issues raised in the GA4GH community, finding equitable, inclusive ways to build products that benefit diverse groups.
Distributed across four Host Institutions, our staff team supports the mission and operations of GA4GH.
Curious who we are? Meet the people and organisations across six continents who make up GA4GH.
More than 500 organisations connected to genomics — in healthcare, research, patient advocacy, industry, and beyond — have signed onto the mission and vision of GA4GH as Organisational Members.
These core Organisational Members are genomic data initiatives that have committed resources to guide GA4GH work and pilot our products.
This subset of Organisational Members whose networks or infrastructure align with GA4GH priorities has made a long-term commitment to engaging with our community.
Local and national organisations assign experts to spend at least 30% of their time building GA4GH products.
Anyone working in genomics and related fields is invited to participate in our inclusive community by creating and using new products.
Wondering what GA4GH does? Learn how we find and overcome challenges to expanding responsible genomic data use for the benefit of human health.
Study Groups define needs. Participants survey the landscape of the genomics and health community and determine whether GA4GH can help.
Work Streams create products. Community members join together to develop technical standards, policy frameworks, and policy tools that overcome hurdles to international genomic data use.
GIF solves problems. Organisations in the forum pilot GA4GH products in real-world situations. Along the way, they troubleshoot products, suggest updates, and flag additional needs.
NIF finds challenges and opportunities in genomics at a global scale. National programmes meet to share best practices, avoid incompatabilities, and help translate genomics into benefits for human health.
Communities of Interest find challenges and opportunities in areas such as rare disease, cancer, and infectious disease. Participants pinpoint real-world problems that would benefit from broad data use.
See all our products — always free and open-source. Do you work on cloud genomics, data discovery, user access, data security or regulatory policy and ethics? Need to represent genomic, phenotypic, or clinical data? We’ve got a solution for you.
All GA4GH standards, frameworks, and tools follow the Product Development and Approval Process before being officially adopted.
Learn how other organisations have implemented GA4GH products to solve real-world problems.
Help us transform the future of genomic data use! See how GA4GH can benefit you — whether you’re using our products, writing our standards, subscribing to a newsletter, or more.
Help create new global standards and frameworks for responsible genomic data use.
Align your organisation with the GA4GH mission and vision.
Solve your real-world data problems with support from this valuable network of global institutions.
Work with like-minded groups committed to better data use in areas like rare disease, cancer, and infectious disease.
Share your thoughts on all GA4GH products currently open for public comment.
Solve real problems by aligning your organisation with the world’s genomics standards. We offer software dvelopers both customisable and out-of-the-box solutions to help you get started.
Learn more about upcoming GA4GH events. See reports and recordings from our past events.
Speak directly to the global genomics and health community while supporting GA4GH strategy.
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Read news, stories, and insights from the forefront of genomic and clinical data use.
Attend an upcoming GA4GH event, or view meeting reports from past events.
See new projects, updates, and calls for support from the Work Streams.
Read academic papers coauthored by GA4GH contributors.
Listen to our podcast OmicsXchange, featuring discussions from leaders in the world of genomics, health, and data sharing.
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View the latest GA4GH updates, Genomics and Health News, Implementation Notes, GDPR Briefs, and more.
Discover all things GA4GH: explore our news, events, videos, podcasts, announcements, publications, and newsletters.
To advance our understanding of human health and disease, we need to share genomic and related health data. The Framework for responsible sharing of genomic and health-related data, or the Framework for short, is guided by human rights, privacy, non-discrimination, and procedural fairness. All products developed by GA4GH build on the foundation of the Framework.
Researchers, clinicians, clinical laboratories, data generators, data custodians, data access committees, ethics review committees, data protection authorities, funding agencies, developers, research participants & patient communities, security officers, and research institutes
Openness, inclusion, and respect in dementia research (2019)
Federated discovery and sharing of genomic data using Beacons (2019)
Model Framework for Governance of Genomic Research and Biobanking in Africa - a Content Description (2018)
Broaden human-rights focus for health data under GDPR (2018)
Appraisal of the Jordanian Law for Data Sharing in Stem Cell Research: In the Light of the ‘GA4GH Framework’ for Innovative Cancer Care. (2018)
From Rosalind Franklin to Barack Obama: Data Sharing Challenges and Solutions in Genomics and Personalised Medicine (2017)
Facilitating a Culture of Responsible and Effective Sharing of Cancer Genome Data (2016)
Ethical issues in consumer genome sequencing: Use of consumers samples and data (2016)
An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health (2016)
Data sharing in stem cell translational science: Policy statement by the International Stem Cell Forum Ethics Working Party (2015)
Building the foundation for genomics in precision medicine (2015)
All the World’s a Stage: Facilitating Discovery Science and Improved Cancer Care through the Global Alliance for Genomics and Health (2015)
International code of conduct for genomic and health-related data sharing (2014)
Framework for responsible sharing of genomic and health-related data. (2014)
Framework for Responsible Sharing of Genomic and Health-Related Data (2014)
Building a Data Sharing Model for Global Genomic Research (2014)
Dive deeper into this Product!Sharing genomic and health-related data for biomedical research is vital to ensure continued progress in our understanding of human health and well-being. The challenges raised by international, collaborative research require a framework that brings together a diverse group of people to share principles about data exchange. The goal of the Framework for responsible sharing of genomic and health-related data, or the Framework for short, shares foundational principles and core elements that should guide responsible data sharing. The Framework aims to protect and promote the rights and interests of individuals globally in relation to data sharing; complement laws and regulations on privacy and personal data collection; foster responsible and international data sharing; serve as a dynamic instrument that can respond to changes in the field; and provide overarching principles to be respected in developing legally-binding tools. All standards and policies developed by GA4GH are built upon the foundation laid out in the Framework.
Catch up with all news and articles associated with Framework for responsible sharing of genomic and health-related data.