GDPR & International Health Data Sharing Forum

Publishes regular briefs exploring the impact of GDPR on sharing genomics and related health data

To discuss important topics and questions on the implications of the European Union’s General Data Protection Regulation (GDPR) for international health research, the GA4GH Regulatory & Ethics Work Stream (REWS) publishes regular briefs. Subscribe to upcoming briefs covering the impact of GDPR on sharing genomic and related health data, or read past briefs.

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  • Helps others stay up to date on important topics related to GDPR and its implications on genomic and health-related data sharing
  • Provides clarity (in the form of briefs) on complex issues relating to GDPR

Target users

Researchers, clinicians, data custodians, ethics review committees, data protection authorities, and security officers

Image summary: These briefs discuss various impacts of the General Data Protection Regulation (GDPR) on genomic and health data sharing.

Community resources

Dive deeper into this product! Effective as of 2018, the European Union’s General Data Protection Regulation (GDPR) has a number of implications on international health research involving the collection, use, and cross-border sharing of people’s personal information. As digital technology rapidly develops, the GDPR urges a stronger legal framework to protect and enhance the rights of research participants, patients, and the public. These regular briefs discuss important topics and questions about the impact of GDPR on sharing genomic and related health data. Read past briefs. Subscribe to the newsletter.

Don't see your name? Get in touch:

  • Fabiana Arzuaga
    Ministerio de Ciencia, Tecnología e Innovación
  • Dixie Baker
    Martin, Blanck and Associates
  • Michael Baudis
    University of Zurich
  • Alexander Bernier
    McGill University / Université McGill
  • Michael Brudno
    University Health Network
  • Ramon Felciano
    Digital Alchemy
  • Yann Joly
    Centre of Genomics and Policy
  • Fruzsina Molnár-Gábor
    Heidelberg University
  • Pilar Nicolas
    Independent Contributor, University of the Basque Country
  • Tommi Nyrönen
  • Pedro Rondot Radío
    Angel H. Roffo Institute of Oncology
  • Chris Sander
    Dana-Farber Cancer Institute
  • Adrian Thorogood
    Terry Fox Research Institute
  • Susheel Varma
    Information Commissioner's Office

News, events, and more

Catch up with all news and articles associated with GDPR & International Health Data Sharing Forum.

Neon DNA strands intertwining with digital code symbolising the fusion of biology and technology
11 Apr 2024
GDPR Brief: when are synthetic health data personal data?
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A glowing globe with connecting nodes spread across the globe
27 Apr 2023
GDPR Brief: GDPR going forward — prospects of resuming transatlantic data sharing
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Person pressing a donate button on a keyboard.
7 Nov 2022
GDPR Brief: the EU Data Governance Act — new pathways for consented reuse of information
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