Family History Toolkit

Your family health history includes the health conditions experienced by your family members over the course of their lifetimes. This information helps genetic counselors and other clinicians identify a patient’s disease risk — and sometimes prevent disease from developing at all. But gathering family health history is time-consuming. Electronic tools can help patients put together their family health history before visiting the clinic, saving time.

Compiled by the GA4GH Clinical & Phenotypic Data Capture Work Stream, the Family History Toolkit offers an inventory of tools that capture family health history and a statement of best practices that covers approaches and challenges to using this information in clinical care systems.