The NIH recently issued a Request for Information on Proposed Updates and Long-Term Considerations for the NIH Genomic Data Sharing (GDS) Policy. 

GA4GH called upon its broad international network to provide feedback on the proposed updates to the policy; we refined our collective feedback through a series of virtual and in-person discussions before drafting and submitting a response on behalf of the GA4GH Steering Committee.

Our recommendations reflect the overall work of GA4GH and our ongoing mission to employ international genomic data sharing in order to activate the right of all humans to benefit from science, as outlined in Article 27 of the UN’s 1948 Declaration of Human Rights.

Read the full GA4GH response to proposed updates to the NIH Genomic Data Sharing Policy.