GDPR and International Health Data Sharing Forum


Please find below a compendium of all of the GDPR Briefs from the Global Alliance for Genomics and Health.

GDPR & International Health Data Sharing Forum
The GA4GH GDPR Forum publishes monthly “GDPR Briefs” that answer important questions about the GDPR’s impact on various aspects of international health research and genomic and health-related data sharing, and that further explore the various issues raised in the GDPR Primer.

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Number

Date

Title

Author(s)

31

02-2021

The Public Interest and the GDPR

Michael Beauvais

30

12-2020

International “onward” transfers of genomic data under the EU Standard Contractual Clauses

Phil Bradley-Schmieg

29

11-2020

The Concept of Personal Data in the GDPR

Alexander Bernier

28

10-2020

Joint data controllership in the genomics context

Colin Mitchell, Johan Ordish, & Alison Hall

27

09-2020

Transferring genomic and health-related data following Schrems II

Fruzsina Molnar-Gabor & Michael Beauvais

26

08-2020

Storage limitations for genomic and health-related personal data

Regina Becker

25

07-2020

Understanding the extraterritorial effect of the GDPR for genomic and health-related research

Michael Beauvais

24

06-2020

The interplay between the Clinical Trials Regulation and the GDPR

Irith Kist

23

05-2020

The Finnish Secondary Use Act 2019

Tom Southerington

22

05-2020

Are university-employed scientific researchers ‘Data Controllers’ for the purposes of the GDPR?

David Townend

21

04-2020

What Records of Processing Does the GDPR Require Health Sector Organizations to Maintain?

Alexander Bernier

20

03-2020

Cloud Computing

Ruth Boardman

19

03-2020

Standard Contractual Clauses for Transferring Genomic and Health Data

Fruzsina Molnar-Gabor

18

02-2020

Standard Contractual Clauses: Opinion of the Advocate General in Schrems II

Michael Beauvais & Johan Ordish

17

01-2020

“At Least One” Legal Basis for Processing Under the GDPR: Clarifying Article 6(1)

David Townend

16

12-2019

Is ‘Consent for Genomic and Health-Related Research’ Specific Enough to Constitute a Valid Consent Under the GDPR?

Edward Dove

15

11-2019

Withdrawing Consent to Data Processing Under the GDPR

Michael Beauvais

14

10-2019

Japan obtains the first adequacy agreement under the GDPR

Handi Xu, Yann Joly, & Jennifer Stoddart

13

09-2019

The Data Protection Impact Assessment and Genomic Health Research

Alexander Bernier & Jasper Bovenberg

12

08-2019

Codes of Conduct under the GDPR: A Useful but Challenging Tool to Enable Responsible International Data Sharing

Edward Dove

11

07-2019

Are pseudonymised data within the GPDR’s scope?

Mark Phillips

10

06-2019

How is Article 89 implemented across the EU/EEA?

Ruth Boardman & Fruzsina Molnar-Gabor

09

05-2019

How can researchers approach international data transfers under the GDPR?

Edward Dove, Robert Eiss, & Jennifer Stoddart

08

04-2019

When can I rely on broad consent for research?

Mark Phillips

07

03-2019

What is the difference between research ethics consent and data protection consent?

Edward Dove

06

02-2019

What information can research participants demand under the GDPR?

Mark Phillips

05

01-2019

Automated Decision-Making and Profiling

Mark Taylor

04

12-2018

What specific protections apply to health-related, genetic, or biometric data?

Alison Hall & Johan Ordish

03

11-2018

To Whom Does the GDPR Apply?

Edward Dove

02

10-2018

Can Genomic Data Be Anonymized?

Mark Phillips

01

09-2018

Ten Ways the GDPR Impacts International Health-Related Data Sharing

Edward Dove & Mark Phillips