Enabling responsible genomic data sharing for the benefit of human health

The Global Alliance for Genomics and Health (GA4GH) is a policy-framing and technical standards-setting organization, seeking to enable responsible genomic data sharing within a human rights framework.

 

OPEN FOR COMMENT

 

The GA4GH Code of Conduct is now open for public comment. Please submit comments and feedback via Google Doc or email by Thursday, 8 September at 17:00 UTC.
Review and edit the GA4GH Code of Conduct

The latest from GA4GH

11 August 2022
New templates streamline gaining consent for clinical genomics and large scale initiatives — completing the GA4GH Consent Toolkit

To aid researchers and clinicians in developing clear and digestible consent forms, the GA4GH Regulatory and Ethics Work Stream (REWS) has developed Consent Clauses for Large Scale Initiatives and Clinical Genomic Consent Clauses. These latest additions complete the REWS Consent Toolkit

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2 August 2022
First GA4GH standard published by ISO will reshape how doctors and researchers share phenotypic information

Phenopackets adopted as an ISO Standard

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22 September 2022 | Barcelona, Spain
GA4GH 10th Plenary

The GA4GH 10th Plenary Meeting will be held from 22 to 23 September 2022 at the CosmoCaixa in Barcelona, Spain!

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Organizational members including:

OICR
Broad Institute
Wellcome Sanger Institute
EMBL-EBI

How we work

GA4GH Work Streams develop standards and tools that are founded on the Framework for Responsible Sharing of Genomic and Health-Related Data. Their work is designed to enable international genomic data sharing based on the specific needs of clinical and research Driver Projects — real-world genomic data initiatives sourced from around the globe.