The Data Use & Researcher Identities (DURI) Work Stream aims to provide digital solutions for communicating how data sets can be used for research, and by whom. Patients and research participants expect their personal data to stay private and be shared with researchers only under terms to which they consented. Researchers want to simplify their access to this data through a portable electronic identity that travels around the world, verifying who they are and what kind of research they do.
DURI works toward both these goals, producing standards that allow identified researchers different levels of access to protected datasets. DURI designs can be implemented in a variety of global data sharing environments.

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Announcements
Helps institutions automatically determine who is a bonafide researcher with an approved reason to access their data. Develops portable electronic identities for researchers and an ontology that matches data use restrictions to researcher purposes.
Products
Publications
Documents
Videos
| Date | Title | |
|---|---|---|
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26 May 2021 | DUO webinar (Genomics in Health Implementation Forum) |
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24 September 2020 | GA4GH 8th Plenary: Data Use & Researcher Identities (DURI) Work Stream 2020 Update |
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24 June 2020 | Using the GA4GH toolkit: GA4GH Passports part 2 (technical deep dive) |
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18 June 2020 | Using the GA4GH toolkit: GA4GH Passports part 1 |
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27 September 2019 | Using the GA4GH toolkit: Data Use Ontology for automating access to human genomic data |
Contributors
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Get in touch- Jonathan LawsonData Use & Researcher Identity (DURI) Work Stream LeadBroad Institute of MIT and Harvard, Cambridge, US
- Dixie BakerMartin, Blanck and Associates
- Max BarkleyDNAstack, Toronto
- Michael BaudisUniversity of Zurich, Zurich
- Guillaume BourqueMcGill University / Université McGill, Montréal, Canada
- Sarion BowersWellcome Sanger Institute (WSI), Hinxton, UK
- Rebecca BoylesRTI International
- Michael BrudnoUniversity Health Network, Toronto, Canada
- Tony BurdettEMBL's European Bioinformatics Institute (EBI), Hinxton, UK
- Moran CabiliFoundation Medicine, Inc., Cambridge
- Salvador Capella-GutierrezBarcelona Supercomputing Center, Barcelona
- Knox CareyIntertrust Technologies Corporation, Sunnyvale
- Shu Hui ChenNIH National Heart, Lung, and Blood Institute (NHLBI), Bethesda
- Hayley ClissoldWellcome Sanger Institute (WSI), Hinxton, UK
- Mélanie CourtotOntario Institute for Cancer Research (OICR), Toronto, Canada
- Jaime DelgadoUniversitat Politecnica de Catalunya (UPC)
- Megan DoerrSage Bionetworks, Seattle
- Marc FiumeDNAstack, Toronto
- Ian ForeNIH National Center for Biotechnology Information (NCBI)
- Mallory FreebergEMBL's European Bioinformatics Institute (EBI), Hinxton, UK
- Robert FreimuthMayo Clinic, Rochester
- Melissa HaendelUNC School of Medicine
- Francis JeansonDatadex
- Giselle KerryELIXIR, International
- Melissa KonopkoELIXIR, International
- Martin KubaMasaryk University, Brno, Czechia, ELIXIR Cloud and AAI, International
- Fabio LiberanteWellcome Sanger Institute (WSI), Hinxton, UK
- Nancy MahFraunhofer Institute for Biomedical Engineering
- Mizuki MoritaOkayama University
- Nicola MulderUniversity of Cape Town, Cape Town
- Jean MullerLaboratoire de génétique médicale (UMR_S 1112)
- Heimo MuollerMedical Univerisity Graz
- Satoshi NagaieTohoku University Tohoku, Medical Megabank Organization, Sendai
- Jamal NasirUniversity of Northampton, Northampton
- Tommi NyrönenCSC – IT CENTER FOR SCIENCE
- Soichi OgishimaTohoku University Tohoku, Medical Megabank Organization, Sendai
- Laura PaglioneSpherical Cow Group, New York, NY, USA
- Helen ParkinsonEMBL's European Bioinformatics Institute (EBI), Hinxton, UK
- Kathy ReinoldIndependent Contributor
- Kurt RodarmerIndependent Contributor
- Laura Lyman RodriguezPatient-Centered Outcomes Research Institute (PCORI)
- Greg RushtonBroad Institute of MIT and Harvard, Cambridge, US
- Christopher SiwyNIH Office of Data Science Strategy (ODSS)
- Nara SobreiraJohns Hopkins University School of Medicine, Maryland
- Heidi SofiaNIH National Human Genome Research Institute (NHGRI), Bethesda
- Christine SuverSage Bionetworks, Seattle
- Morris SwertzUniversity Medical Center Groningen
- Jonathan TeddsELIXIR, International
- Ilia TulchinskyAlphabet
- Susheel VarmaInformation Commissioner's Office
- Douglas VoetBroad Institute of MIT and Harvard, Cambridge, US
- Vanessa Vogel-FarleyRARE-X, Aliso Viejo, California
- Craig VoisinGoogle LLC, Mountain View
- Chisato YamasakiNational Institute of Biomedical Innovation, Health and Nutrition (NIBIOHN)
- Ye YanNIH National Heart, Lung, and Blood Institute (NHLBI), Bethesda, Trans-Omics for Precision Medicine (TOPMed)
- Christina YungOntario Institute for Cancer Research (OICR), Toronto, Canada, Indoc Research, Toronto




