Data sharing has the potential to accelerate scientific discoveries and improve medical care. However, it is also important to prevent data misuse and exploitation. Data access committees (DACs) can help manage the data access process by reviewing requests and deciding whether or not to grant access. To ensure that data access requests are met with consistent review criteria, the GA4GH Regulatory & Ethics Work Stream (REWS) is developing a Data Access Committee Review Standards (DACReS) Toolkit.
The Toolkit contains:
- Data Access Committee Guiding Principles and Procedural Standards Policy: This policy offers a road map for creating standard operating procedures for DACs, including solutions for data leaks, progress reporting, and policy implementation through essential and desired criteria.
- Model Data Access Agreement (DAA) Clauses: This document contains template clauses that can be used to draft data access agreements.

Image summary -
Benefits
- Provides guidance for data access committees, aiming to harmonise best practices across institutions
- Promotes more efficient, secure, and consistent procedures for data access
- Builds greater trust in the data access committee review process across institutions, repositories, and researchers
Target users
Data access committees
Announcements
| Date | Title |
|---|---|
| 5 December 2024 | The GA4GH Model Data Access Agreement (DAA) Clauses have been approved as an official GA4GH product |
Publications
Documents
| Date | Title |
|---|---|
| 5 December 2024 | Model Data Access Agreement (DAA) Clauses |
| 14 September 2023 | Code of Ethics and Community Conduct (CECC) |
| 12 October 2022 | Presentation: driving innovation in genomic data science through ethical and efficient data access |
| 13 September 2022 | Meeting agenda: driving innovation in genomic data science through ethical and efficient data access (2022) |
| 27 October 2021 | Data Access Committee Guiding Principles and Procedural Standards Policy (v1.0) |
| 13 May 2021 | Meeting agenda: DACReS (13 May 2021) |
| 1 March 2021 | Meeting minutes: DACReS (2021) |
Contributors
Don't see your name..?
Get in touch- Jonathan LawsonData Access Committee Review Standards (DACReS) Toolkit LeadBroad Institute of MIT and Harvard, Cambridge, US
- Vasiliki RahimzadehData Access Committee Review Standards (DACReS) Toolkit LeadBaylor College of Medicine
- Rebecca BoylesRTI International
- Hayley ClissoldWellcome Sanger Institute (WSI), Hinxton, UK
- Thijs DevriendtKU Leuven
- Jaime Guidry AuvilNIH National Cancer Institute (NCI), Bethesda
- Saumya JamuarKK Women's and Children's Hospital
- Yann JolyCentre of Genomics and Policy, Montreal
- Arshiya Merchant
- Madeleine MurtaghUniversity of Glasgow
- Ann NovakowskiSage Bionetworks, Seattle
- Dina PaltooNIH National Heart, Lung, and Blood Institute (NHLBI), Bethesda
- Maili Raven-AdamsThe Nuffield Council on Bioethics
- Laura Lyman RodriguezPatient-Centered Outcomes Research Institute (PCORI)
- Matthieu SchapranowHasso Plattner Institute for Digital Engineering
- Christine SuverSage Bionetworks, Seattle
- Adrian ThorogoodTerry Fox Research Institute, Vancouver, Canada
- Ye YanNIH National Heart, Lung, and Blood Institute (NHLBI), Bethesda, Trans-Omics for Precision Medicine (TOPMed)
Driver Projects
| Title | Thematic Area |
|---|---|
| ICGC ARGO | Cancer |