Trust is necessary for sharing genomic and related health data effectively and responsibly. But without a safe, robust, and trustworthy technology infrastructure, it is difficult for stakeholders to trust one another, for users to trust the platforms that implement standards, and for patients and participants to trust that their personal data will be handled responsibly and respectfully. Developed by the GA4GH Data Security Work Stream, the Data Security Infrastructure Policy (DSIP) recommends best practices to maximise the security of international genomic data sharing. The document is relevant to anyone using or creating software held to high security standards.

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Benefits
- Outlines the technological building blocks for enabling a foundation for secure data sharing
- Provides a framework of operational assurance for sharing genomic and related health data
Target users
Data custodians, data protection authorities, and security officers
| Title | Related Driver Projects and Organisations |
|---|---|
| CanDIG V2 | Canadian Distributed Infrastructure for Genomics (CanDIG) |
Publications
Documents
| Date | Title |
|---|---|
| 14 September 2023 | Code of Ethics and Community Conduct (CECC) |
| 12 March 2015 | Data Security Infrastructure Policy (DSIP) (v1.1) |
Contributors
Don't see your name..?
Get in touch- Dixie BakerData Security Infrastructure Policy (DSIP) LeadMartin, Blanck and Associates
- David BernickBroad Institute of MIT and Harvard, Cambridge, US
- Knox CareyIntertrust Technologies Corporation, Sunnyvale
Driver Projects
| Title | Thematic Area |
|---|---|
| Canadian Distributed Infrastructure for Genomics (CanDIG) | Rare Disease Cancer Complex Traits Basic Biology |
Version history
| Version | Maintenance | Development | PDAP Review | Date |
|---|---|---|---|---|
| Data Security Infrastructure Policy v4.0 | Maintained | Development | Draft | 25 Sep 2019 |
| Data Security Infrastructure Policy v3.0 | Maintained | Development | Draft | 9 Aug 2016 |
| Data Security Infrastructure Policy v2.0 | Maintained | Development | Draft | 9 Aug 2016 |
| Data Security Infrastructure Policy v1.1 | Maintained | Development | Draft | 15 Mar 2015 |