Despite the benefits of genetic and genomic technologies, siloed data sharing between researchers, jurisdictions, and institutions remains a consistent challenge. The GA4GH Data Sharing Lexicon aims to facilitate a shared understanding of the terms which underpin the practice of data sharing for health and research purposes. This allows for consistent usage of terminology within policy documentation as well as in agreements.
Benefits
- Supports international data sharing by promoting terms commonly encountered when sharing data for health or research purposes
- Builds upon terminology used in GA4GH documents and policies
Target users
Researchers, data generators, data custodians, data access committees, ethics review committees, data protection authorities, funding agencies, public, security officers, and research institutes
Publications
| Title | Author(s) | Year |
|---|---|---|
| Communicating clearly about data sharing in genomics | 2025 |
Documents
| Date | Title |
|---|---|
| 12 February 2025 | GA4GH Data Sharing Lexicon |
Contributors
Don't see your name..?
Get in touch- Alison HallData Sharing Lexicon LeadPHG Foundation, Cambridge