Ethical Provenance Toolkit

Tools to promote consistency and harmonisation throughout the stages of the biomedical data life cycle — ensuring clear oversight despite differences between institutions

Overview

Summary Benefits Target users

Developed by the GA4GH Regulatory & Ethics Work Stream (REWS), the Ethical Provenance Toolkit aims to provide harmonised tools across research institutions and enable the clear oversight of biomedical data throughout their life cycle. This will promote the development of new tools that encourage consistent practices supporting genomic research.

The Toolkit Contains:

Model Data Access Agreement (DAA) Clauses: This document contains template clauses that can be used to draft data access agreements.

Benefits

Aims to create tools and policies to harmonise elements of the research life cycle
Aims to promote transparency across data use within this life cycle to ensure accountability

Target users

Research institutes

Publications Documents

Publications

Title	Author(s)	Year
Recording the ethical provenance of data and automating data stewardship	Bernier, A. et al. Bernier, A., Raven-Adams, M., Zaccagnini, D., Knoppers, B. M.	2023

Documents

Date	Title
5 December 2024	Model Data Access Agreement (DAA) Clauses
14 September 2023	Code of Ethics and Community Conduct (CECC)
27 April 2022	Meeting agenda: Ethical Provenance Toolkit (27 Apr 2022)