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22 Jan 2018

Principles & Policies

Cloud Work Stream Clinical & Phenotypic Data Capture (Clin/Pheno) Work Stream Data Security Work Stream Data Use & Researcher Identity (DURI) Work Stream Discovery Work Stream Genomic Knowledge Standards (GKS) Work Stream Large-Scale Genomics (LSG) Work Stream Regulatory & Ethics Work Stream (REWS)

Authorisation and Authentication Infrastructure (AAI) Bad Actors in Research Environments (BARE) Beacon Browser Extensible Data (BED) Clinical Data Sharing and Consent Cloud Security and Privacy Cohort Representation Consent Policy Consent Toolkit CRAM Data Access Committee Review Standards (DACReS) Toolkit Data Connect Data Privacy and Security Policy Data Repository Service (DRS) Data Security Infrastructure Policy (DSIP) Data Use Ontology (DUO) Diversity in Datasets Ethical Provenance Toolkit Ethics Review Recognition Policy Family History Toolkit Framework for Involving and Engaging Participants, Patients, and Publics in Genomics Research and Health Implementation Framework for responsible sharing of genomic and health-related data GDPR & International Health Data Sharing Forum Genetic Data Encryption (Crypt4GH) Genetic Discrimination Toolkit Genetic Variation Formats (VCF) htsget Machine Readable Consent Guidance (MRCG) Passports Pedigree Pharmacogenomics Data Standardisation Phenopackets Policy on Clinically Actionable Genomic Research Results Public Attitudes for Genomic Policy — Blog Posts refget Responsible Data Sharing to Respond to the COVID-19 Pandemic: Ethical and Legal Considerations Risk Assessment Methodology for Software Stacks RNAget SAM/BAM Sequence Annotation (SA) Service Info Service Registry Task Execution Service (TES) Tool Registry Service (TRS) Variant Annotation (VA) Variant Benchmarking Tools Variation Representation (VRS) WGS Quality Control Standards Workflow Execution Service (WES) Your DNA, Your Say (Participant Values Survey)

Standards for Professional Conduct / Code of Conduct (v1.0)