Meeting agenda: Public Attitudes for Genomic Policy (28 Apr 2022)

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About us

About us
Strategic Road Map
History
GA4GH Inc.
Leadership
Funders Forum
GA4GH Global Engagement Strategy
Staff

About us

Learn how GA4GH helps expand responsible genomic data use to benefit human health.

Strategic Road Map

Our Strategic Road Map defines strategies, standards, and policy frameworks to support responsible global use of genomic and related health data.

History

Discover how a meeting of 50 leaders in genomics and medicine led to an alliance uniting more than 5,000 individuals and organisations to benefit human health.

GA4GH Inc.

GA4GH Inc. is a not-for-profit organisation that supports the global GA4GH community.

Leadership

The GA4GH Council, consisting of the Executive Committee, Strategic Leadership Committee, and Product Steering Committee, guides our collaborative, globe-spanning alliance.

Funders Forum

The Funders Forum brings together organisations that offer both financial support and strategic guidance.

GA4GH Global Engagement Strategy

The EDI Advisory Group responds to issues raised in the GA4GH community, finding equitable, inclusive ways to build products that benefit diverse groups.

Staff

Distributed across a number of Host Institutions, our staff team supports the mission and operations of GA4GH.

Our community

Our community
Organisational Members
Driver Projects
Strategic Partners
Assigned Experts
Individual Contributors

Our community

Curious who we are? Meet the people and organisations across six continents who make up GA4GH.

Organisational Members

More than 500 organisations connected to genomics — in healthcare, research, patient advocacy, industry, and beyond — have signed onto the mission and vision of GA4GH as Organisational Members.

Driver Projects

These core Organisational Members are genomic data initiatives that have committed resources to guide GA4GH work and pilot our products.

Strategic Partners

This subset of Organisational Members whose networks or infrastructure align with GA4GH priorities has made a long-term commitment to engaging with our community.

Assigned Experts

Local and national organisations assign experts to spend at least 30% of their time building GA4GH products.

Individual Contributors

Anyone working in genomics and related fields is invited to participate in our inclusive community by creating and using new products.

What we do

What we do
Study Groups
Work Streams
GA4GH Implementation Forum
National Initiatives Forum
Communities of Interest
Technical Alignment Subcommittee (TASC)
Calendar

What we do

Wondering what GA4GH does? Learn how we find and overcome challenges to expanding responsible genomic data use for the benefit of human health.

Study Groups

Study Groups define needs. Participants survey the landscape of the genomics and health community and determine whether GA4GH can help.

Work Streams

Work Streams create products. Community members join together to develop technical standards, policy frameworks, and policy tools that overcome hurdles to international genomic data use.

GA4GH Implementation Forum

GA4GH Implementation Forum (GIF)
GIF solves problems. Organisations in the forum pilot GA4GH products in real-world situations. Along the way, they troubleshoot products, suggest updates, and flag additional needs.
GIF Projects
GIF Projects are community-led initiatives that put GA4GH products into practice in real-world scenarios.
GIF “Ask Me Anything” (AMA) programmes
The GIF AMA programme produces events and resources to address implementation questions and challenges.

National Initiatives Forum

NIF finds challenges and opportunities in genomics at a global scale. National programmes meet to share best practices, avoid incompatabilities, and help translate genomics into benefits for human health.

Communities of Interest

Communities of Interest find challenges and opportunities in areas such as rare disease, cancer, and infectious disease. Participants pinpoint real-world problems that would benefit from broad data use.

Technical Alignment Subcommittee (TASC)

The Technical Alignment Subcommittee (TASC) supports harmonisation, interoperability, and technical alignment across GA4GH products.

Calendar

Find out what’s happening with up to the minute meeting schedules for the GA4GH community.

Our products

Our products
Product Development and Approval Process
Implementations

Our products

See all our products — always free and open-source. Do you work on cloud genomics, data discovery, user access, data security or regulatory policy and ethics? Need to represent genomic, phenotypic, or clinical data? We’ve got a solution for you.

Product Development and Approval Process

All GA4GH standards, frameworks, and tools follow the Product Development and Approval Process before being officially adopted.

Implementations

Learn how other organisations have implemented GA4GH products to solve real-world problems.

Get involved

Get involved
Join us
Open calls
Implement a product
Attend an event
Become a funder
Subscribe to the GA4GH newsletter
Contact us

Get involved

Help us transform the future of genomic data use! See how GA4GH can benefit you — whether you’re using our products, writing our standards, subscribing to a newsletter, or more.

Join us

Join our community! Explore opportunities to participate in or lead GA4GH activities.

Join our Work Streams and communities
Help create new global standards and frameworks for responsible genomic data use.
Join as an Organisational Member
Align your organisation with the GA4GH mission and vision.
Join our leadership
Want to advance both your career and responsible genomic data sharing at the same time? See our open leadership opportunities.
Join our staff
Join our international team and help us advance genomic data use for the benefit of human health.

Open calls

Discover current opportunities to engage with GA4GH. Share feedback on our products, apply for volunteer leadership roles, and contribute your expertise to shape the future of genomic data sharing.

Implement a product

Solve real problems by aligning your organisation with the world’s genomics standards. We offer software dvelopers both customisable and out-of-the-box solutions to help you get started.

Attend an event

Learn more about upcoming GA4GH events. See reports and recordings from our past events.

Become a funder

Speak directly to the global genomics and health community while supporting GA4GH strategy.

Subscribe to the GA4GH newsletter

Be the first to hear about the latest GA4GH products, upcoming meetings, new initiatives, and more.

Contact us

Questions? We would love to hear from you.

News and events

News
Blogs and Briefs
Events
Announcements
Publications
Podcasts
Videos
Newsletters

News

Read news, stories, and insights from the forefront of genomic and clinical data use.

Blogs and Briefs

Health Data Sharing, Privacy, and Regulatory Forum (formerly GDPR Forum)
Publishes regular briefs exploring laws and regulations, including data protection laws, that impact genomic and related health data sharing
Public Attitudes for Genomics and Policy Blog
Translates findings from studies on public attitudes towards genomic data sharing into short blog posts, with a particular focus on policy implications

Events

Attend an upcoming GA4GH event, or view meeting reports from past events.

Announcements

See new projects, updates, and calls for support from the Work Streams.

Publications

Read academic papers coauthored by GA4GH contributors.

Podcasts

Listen to our podcast OmicsXchange, featuring discussions from leaders in the world of genomics, health, and data sharing.

Videos

Check out our videos, then subscribe to our YouTube channel for more content.

Newsletters

View the latest GA4GH updates, Genomics and Health News, Implementation Notes, GDPR Briefs, and more.

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28 Apr 2022

Agenda

Regulatory & Ethics Work Stream (REWS)

Meeting agenda: Public Attitudes for Genomic Policy (28 Apr 2022)

The Global Alliance for
Genomics and Health

Accelerating progress in human health with products that expand responsible, effective, and democratised use of genomic data.

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