Register for webinar: Grand challenges in rare diseases

29 Feb 2024

Join us on 29 February at 16:00 UTC for a webinar to commemorate Rare Disease Day. Hosted by the GA4GH Rare Disease Community of Interest, the webinar will focus on the power of data sharing and standardisation to improve patient outcomes.

Guest speakers Matt Bolz-Johnson (EURORDIS) and Marc Hanauer (Orphanet) will share their perspectives on the need to foster collaboration and innovation in the field of rare diseases. Attendees will also learn about the work of the GA4GH Rare Disease Community of Interest, ways that they can get involved, and how the community intersects with the needs of international rare disease initiatives.

Read the press release.

Register for the webinar.

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