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Join us on 27 February for a special webinar to celebrate Rare Disease Day!

28 Jan 2025

Daria Julkowska, Coordinator of the European Rare Diseases Research Alliance, Charlene Son Rigby, CEO of Global Genes, and Heidi Rehm, Chair of GA4GH, will share their perspectives on driving innovation, fostering collaboration, and empowering patient communities in the rare disease space.

Hosted by the GA4GH Rare Disease Community of Interest, the webinar will focus on collaborative efforts to advance rare disease knowledge and enhance global strategies for patient engagement.

Attendees will learn about the work of the GA4GH Rare Disease Community of Interest, ways to get involved, and how the community intersects with the needs of international rare disease initiatives.

Register here: https://us02web.zoom.us/webinar/register/WN_A3horXPFSN6xy3l70sffOQ

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