See more information

GA4GH Policy Brief: children’s data protection and genomic research (part 2: consent and lawful bases)

4 Feb 2025

The GA4GH Health Data Sharing, Privacy, and Regulatory Forum publishes Policy Briefs to explore laws and regulations that have an impact on genomic and related health data sharing. Following discussion of general considerations related to protection of children’s genomic and health data, published on 23 January, part two of this two-part Policy Brief, by Michael J. S. Beauvais, further explores considerations with respect to consent and lawful bases under the General Data Protection Regulation (GDPR).

Read part one here.

Read part two here.

Latest announcements

24 Jun 2025
GA4GH and CRDSA agree to a Strategic Partnership
See more
17 Jun 2025
Policy Brief: will the UK participate in the European Health Data Space?
See more
12 Jun 2025
GA4GH approves two new products: Categorical Variation Representation Specification (Cat-VRS) and Variant Annotation Specification (VA-Spec)
See more