About us
Learn how GA4GH helps expand responsible genomic data use to benefit human health.
See more information
GA4GH Policy Brief: children’s data protection and genomic research (part 2: consent and lawful bases)
4 Feb 2025
The GA4GH Health Data Sharing, Privacy, and Regulatory Forum publishes Policy Briefs to explore laws and regulations that have an impact on genomic and related health data sharing. Following discussion of general considerations related to protection of children’s genomic and health data, published on 23 January, part two of this two-part Policy Brief, by Michael J. S. Beauvais, further explores considerations with respect to consent and lawful bases under the General Data Protection Regulation (GDPR).
Read part one here.
Read part two here.
Related Work Streams
Latest announcements
GA4GH Public Attitudes blog post explores individual attitudes toward medical and genetic data sharing in Latin America and the development of two new indexes
The Global Alliance for Genomics and Health (GA4GH) Product Steering Committee has approved the release of two new GA4GH products: Experiments Metadata Checklist and Whole Genome Sequencing Quality Control Standards