Co-Lead, Regulatory & Ethics Work Stream


Help lead the creation and harmonization of forward-looking consent and privacy policies, and anticipatory data governance models.

The Global Alliance for Genomics and Health (GA4GH) (https://www.ga4gh.org) is a global volunteer standards development organisation dedicated to realising the potential of genomics in health. Supported by Secretariat staff across four Host Institutions (Ontario Institute for Cancer Research, Broad Institute, Wellcome Sanger Institute and EMBL’s European Bioinformatics Institute), members of the genomics community provide expert leadership to GA4GH’s Work Streams. These include the Regulatory and Ethics Work Stream (REWS), which aims to create and harmonize forward-looking anticipatory data governance models and policies that address various ethical, legal and social implications of international data sharing. 

We would like to invite expressions of interest in the volunteer role of REWS co-lead.

Your Role

This is an opportunity to be at the heart of GA4GH’s standards development and integration work. Working closely with your fellow REWS co-lead and members of the GA4GH Secretariat, the REWS co-lead will contribute to the leadership and direction of REWS efforts, in line with GA4GH’s wider direction and goals, as set at an organisational level. This involves developing the REWS strategy, identifying work that can be taken forward by the group, engaging a broad constituency of stakeholders to promote REWS and its toolkit, chairing calls, working through technical issues as a group, listening, and building consensus. As REWS works with groups from across GA4GH and the world, considerable liaison work will be involved along with the need to engage with other teams both within GA4GH and externally.

Why join us…

GA4GH is committed to developing the standards necessary to enable the potential benefits of genomics in health to be made a reality and to supporting the global data sharing and interoperability that this requires. With a global volunteer community made up of hundreds of individuals from a variety of organisations and institutions, GA4GH provides an active environment in which to drive these aims forward while building on our foundational commitments to human rights, ethics and security.

Having a truly global and diverse community of contributors and leadership is key to GA4GH’s work. We are actively pursuing strategies to increase participation through our engagement and EDI work. We are committed to providing an inclusive and welcoming environment for all contributors at all levels in GA4GH and welcome expressions of interest from all interested individuals.

You have…
  • Substantial experience in the ethical, social and regulatory implications of genomic and health-related data use and sharing
  • Expertise in law, regulatory studies, public policy, bioethics, sociology, or related disciplines
  • An ability to work effectively with, and provide leadership to, a broad range of people from multiple disciplines, backgrounds and cultures
  • The ability to engage with others, explore multiple points of view, and build consensus around policy positions and standards development
  • The capacity to identify opportunities aligned with the group’s goals and translate these into actionable plans
  • A demonstrable ability to work collaboratively
  • An understanding of the complexity and importance of regulatory and ethics policies in genomics, with previous experience in this area, and a deep understanding of the need for standards to work internationally
You might also have…
  • Experience of working with GA4GH or other standards development organisations
  • Experience of working as part of a volunteer community
  • Experience working with a custodian of genomic data
  • Experience working on or with a project for sharing genomic data between organizations
  • Experience at engaging, and/or partnering with, population groups traditionally marginalized in genomic research