The 2020-2021 Strategic Roadmap outlines strategies, standards, and policies for enabling genomic and related health data sharing.
The continued decrease in the cost of genomic sequencing has yielded research cohorts of hundreds of thousands of genomes; millions more samples are anticipated in the coming years from both research and healthcare. However, major barriers in data sharing hinder effective use of the data. In order to overcome these barriers, make the most use of the data, and fulfill the human right to benefit from scientific advances as stated in the Universal Declaration of Human Rights, the research and healthcare communities must come together to agree on common methods for collecting, storing, transferring, accessing, and analyzing data.